Well it seems that my rheumatologist was right and I don’t have PMR but bursitis in my left hip, discovered after a CT and a MRI scan. I’m still confused as I thought I had all the symptoms when I was first diagnosed with PMR and the Prednisolone cleared it immediately. So I am now coming off steroids and on 4 mg at the moment with no visible side effects. I will be having a steroid injection in my hip in a couple of weeks and hoping that will stop the pain which is pretty awful!
I just want to thank you all on this amazing site for the support and information over the last 6 months but hopefully I won’t be back here any time soon! 👏😘
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Jayveedee
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as they will relieve the agonising pain - I know, going through it at the moment! Even after just a few days of the simplest piriformis stretch has made a difference. The hip rotator stretch is good too. I feel the pull in my buttock and it has eased already, it's a sort of mild toothachy sort of pain.
Mine this time was firmly on the left side - until last week when it kindly decided to start playing on the right as well! I'd assumed the left side is due to an achilles problem on the right ankle making me walk squint! Both sides is just not fair! I will get extracorporeal shockwave therapy - but I have to wait until the 2nd week of June! And it takes a while to work too.
Last year I had really bad pain in my Achilles. Both sides, left worse than right and for a long long time. I have had custom made inserts for my shoes. Expensive but worth it as they have completely cured the problem that was stopping me from walking more than a few hundred yards without pain.
However it also means all my lovely high heeled shoes have gone to the charity shop 😥
At least I don't have that problem! Haven't worn a heeled shoe for YEARS. Sandals in the summer, trainers in the winter when it's wet and tackety boots in snow ...
I am having the same problem with achilles on right ankle making me walk awkwardly and its affecting my spine problem. Doing recommend exercise before walking and icing but would be glad if you could suggest anything else to speed things up a bit. Just beginning to get a bit more mobile and this came along, one step forward, two steps back. Sorry you are suffering this too.
Hi Jayveedee, I have the same problem as you, in my right hip. I was given physio exercises but it just got worse and worse. However the pain spread to my knees and back though not shoulders, and eventually neck and jaw. I was diagnosed with PMR and GCA and put on 40mg pred. Immediately all pain vanished though I still have slight pain and a limp in my hip if I walk for longer than 10 minutes. I'm now on 10mg. So I think PMRPro is right in saying the two conditions are often linked. Prior to the hip trouble I have had tendonitis in my knees, ankles, right shoulder and elbows, not all at the same time. I know it is all down to inflammation which is what PMR is all about. Good luck, I hope you keep PMR free. Let us know how your hip injection goes. I was offered one, but haven't yet taken it up as it is so much better on pred.
I will, just wish I didn’t have to wait for two weeks. I can manage the pain with painkillers but then of course I’m constipated! I must say though that I’m feeling much better in myself since reducing the Prednisolone although my hair is still falling out! 😥
Sorry for your hip pain. Do be aware that bursitis can be present with PMR. I had a right shoulder bursitis off and on in my early days of PMR until it was well under control. The steroid injection may certainly help, however would still take a Pred taper slowly. Good luck!
Thank you, I’m reducing on instructions from the rheumatologist who doesn’t want to see me until I am off Prednisolone. I have an appointment in June and am reducing by 0.5 every 3/4 days and don’t seem to be having any side effects.
Well, trochanteric bursitis is manageable with painkillers and a 1/2 yearly steroid injection. My GP can do this. Since I have had PMRand prednisilone it has improved but now I am on 6 mgs it seems to be coming back!!! So appt with GP is in order!! Good luck and be very thankful that it is not PMR❤️❤️
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