Essentially the study has shown a link between Vitamin D supplementation and cutting the risk for auto-immune disease, PMR actually gets a mention! I'm wondering if such supplementation may also cut the risk of flares. If members are unable to read this I'll try and do a cut and paste of salient sections.
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Mack100
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The study suggests that it is longterm use of vit D that reduces the risk of developing autoimmune disorders - so started many years earlier. To be honest, I'm not sure it is supplementation that does the job - but that some people are deficient and others aren't and that has an effect longterm on their immune system.
I take 4000 IU vit D and was given enough originally to get me to a replete status first of all. If I don't take that much the blood level falls slowly. But it doesn't appear to stop anything over a long period. I have a form of PMR that never really goes away and then flares every few years sending me back to 15mg and more at times.
Yes, sadly, many of us found out we were deficient in Vit D after we were diagnosed with an autoimmune disorder. However, I do believe getting my vitamin D on the high end of normal has decreased my flu and cold occurrences. This of course is factoring in a year of lockdown.
Can you speak to this: I take CalcichewD3 but have no idea ‘how much‘ Vit D each tablet contains - I just take as prescribed like a good boy. So what if I add another Vit D supplement, what happens if I take too much by doing so - does the body flush the excess or can it be detrimental to my health?
Calcichew has 400 IU vit D per tablet, it is the second amount given on the box - a very low daily amount even at 800 IU in 2 tablets. I take 4000 IU per day. You just adjust the amount you take as a further supplement.
Vit D is fat soluble so stored in the body and not excreted, just used up. Very high levels can be detrimental - but you would need to be taking the sort of doses that are used short term to boost blood vit D levels. It is safe to take 50,000 IU a week for a few months but not on a permanent basis.
Thank you! I knew you would know the answer! I forgot to mention the CalcichewD3 I’m prescribed comes in plain brown plastic bottles without any indication of composition, either calcium or Vit D. Just states CalcichewD3 x 56 being one month’s supply (28 days). Looks as I’m in deficit regarding D so I’ll up the level. Thanks once again.
Yes very sloppy dispensing. I’ve been taking these since starting Pred., so 27 months and always in plain anonymous brown plastic tubs with my name and dosage. I’m glad someone started the topic Vit D and autoimmune.
Everyone is different - in their PMR (and there are probably a few different varieties of that), their reponse to any given medication and their vit D needs. Some aren't depleted even without supplements. What making sure your vit D level is good achieves is ruling depletion out as a cause of your aches and pains. They can be identical to PMR symptoms.
Thanks for the article Mack, it was also a good reminder to push omega 3 food’s which are supposedly anti inflammatory. Here is a partial list if anyone is interested.eatthis.com/omega-3-foods/
Had a very bad experience with oysters when sailing at the North Brittany Coast, never had any since. The only thing they would have done is lose me a lot of weight!!!!!
I've had natto - not that I remember much of an impression. I like kimchi and some of the other fermented things you get in Korea. Keep trying to tell myself to make some ... Trouble is - when you are in Korea or China eating where the locals eat you don't really know what you are eating!
Thanks for that. However, I'm somewhat confused, as someone else posted an article a little while ago that said it really has to be marine omega3 because of the 'long chains of fats'. I guess any is better than none!
Not necessarily - omega 3s aren't always beneficial! They can make arrythmias worse for example - I discovered that after my rheumy was suggesting them for me ...
This is interesting, I had some skin issues so started taking a good quality Vit D along side probiotics supplement and omega oils day.Also for the last 2 weeks been on a very low carb diet, less than 50g a day and only eat within an 8 hour window which I then have a 16 hour fast, doesn’t always work out.
Before this I was in so much pain especially with my arms, difficultly getting dressed etc
I’m down to 2mg pain free.
Not sure if any of this is just a coincidence but it’s been fast a quite dramatic.
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