Something to look forward to. Light at the end of... - PMRGCAuk

PMRGCAuk

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Something to look forward to. Light at the end of the tunnel

Renesch profile image
21 Replies

Hi everyone, it must be coming up to 2 years on my PMR journey with all the lows of flare ups, prednisone reduction, feeling amazing then feeling so low and hopeless. Weight gain and mood settings. One thing I did do was whenever I felt up to it I kept fit walking and doing light strength classes at the local gym. Yip. Would go along and feel amazed at my achievements only to crash and burn if I over did it. I learnt the hard way as most of us do. Now down to 5mg have been here for 3 months because going lower was less important than being fit and unwell. (I tried)

Today I'm in the mountains in New Zealand where I live about to start a 5 day 4 night hike carrying all my own food and gear staying in mountain huts. I'm feeling amazing and have extra pred on board just in case. I'm with a good friend, have a location beacon with us (sends for the helicopter if activated) and the blessing of my very encouraging and lovely doctor.

Maybe I'm crazy but I'm so excited that I have come this far. Keep looking forward. Will report in when I emerge. Stay well everyone.

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Renesch profile image
Renesch
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21 Replies
DorsetLady profile image
DorsetLadyPMRGCAuk volunteer

Good luck -and hope all goes well for you -keep safe!

daisylazy profile image
daisylazy

Good luck and take care

Maisie1958 profile image
Maisie1958

Brilliant!

Kendrew profile image
Kendrew

Hope it lives up to your expectations and you have a fun and exciting time. Fingers crossed for you.

Mojobumble profile image
Mojobumble

How exciting 😊. Have a fabulous time and a debrief when you return would be great.

PMRpro profile image
PMRproAmbassador

Enjoy - and hope you have a great time. You don't have to be off pred to get back to nearer normal. Hope you don't need the helimedics.

Woodsey1 profile image
Woodsey1

Good luck x

jinasc profile image
jinasc

Have a wonderful time.

SheffieldJane profile image
SheffieldJane

Lovely thing to do. Let someone know as well. Good luck!

Pangolin43 profile image
Pangolin43

How amazing. You are so well planned. Good luck on your adventure and please let us know how it went when you return. 😀

Bcol profile image
Bcol

Hope it all goes well and have a great time.

Chewy21 profile image
Chewy21

Good luck hope you enjoy it.

1957tuibird profile image
1957tuibird

Best wishes Renesch. Your tramping trip sounds awesome. Hopefully something I can return to when my PMR condition abates a bit. The Tararuas are my stamping ground.

Lilly-Gee profile image
Lilly-Gee

Yay go you! Thanks for sharing and wishing you a safe and exciting trek 👏

Pixix profile image
Pixix

Fantastic! Having walked many hundreds of miles in the Swiss mountains I have deep envy, have a great time.

Laineydee profile image
Laineydee

How wonderful to read some joyous news and encouragement for us all!Wishing you the very best time and hope it all goes well.

MrsNails profile image
MrsNails

Good Luck & give us an update when you get back. 🍀🍀🍀

Mai45 profile image
Mai45

Wonderful! Safe trip x

strawclutching profile image
strawclutching

Brilliant! And encouragement for us all, so thank you and keep safe.

Gumnut profile image
Gumnut

Wow. I lived in Oz for 10 years in the Blue Mountains. And visited NZ. Beautiful. Am envious of your enthusiasm and your trip. I'm on a roller coaster like all of us with PMR and Pred reduction. But I do know keeping active if we are able really helps. Xx

rosajur profile image
rosajur

Fantastic. Give us a report afterwards. 8 years of PMR, on 2mg & still I fantasize about hiking the Tongariro Crossing or my local Tararuas one day.

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