Hi everyone, it must be coming up to 2 years on my PMR journey with all the lows of flare ups, prednisone reduction, feeling amazing then feeling so low and hopeless. Weight gain and mood settings. One thing I did do was whenever I felt up to it I kept fit walking and doing light strength classes at the local gym. Yip. Would go along and feel amazed at my achievements only to crash and burn if I over did it. I learnt the hard way as most of us do. Now down to 5mg have been here for 3 months because going lower was less important than being fit and unwell. (I tried)
Today I'm in the mountains in New Zealand where I live about to start a 5 day 4 night hike carrying all my own food and gear staying in mountain huts. I'm feeling amazing and have extra pred on board just in case. I'm with a good friend, have a location beacon with us (sends for the helicopter if activated) and the blessing of my very encouraging and lovely doctor.
Maybe I'm crazy but I'm so excited that I have come this far. Keep looking forward. Will report in when I emerge. Stay well everyone.
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Renesch
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Best wishes Renesch. Your tramping trip sounds awesome. Hopefully something I can return to when my PMR condition abates a bit. The Tararuas are my stamping ground.
Wow. I lived in Oz for 10 years in the Blue Mountains. And visited NZ. Beautiful. Am envious of your enthusiasm and your trip. I'm on a roller coaster like all of us with PMR and Pred reduction. But I do know keeping active if we are able really helps. Xx
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