Hi, my daughter has costa, she is coming down from a 5 day attack of excruciating pain, unable to sit/lie down, screaming into a towel to muffle the sound.
It's heartbreaking watching and listening to her. She was prescribed ora morphe and diazepam but neither touched the pain.
She is going to see a bones consultant and a chiropractor, these attacks are daily and her life is literally on hold, she's to scared to go out, to scared to eat, contemplating shaving her head as washing or brushing it brings on an attack.
Can anyone offer any help, as desperate as I am, she's even more so.