Stop emails from 1 community but not another - PMRGCAuk

PMRGCAuk

21,320 members40,432 posts

Stop emails from 1 community but not another

2534 profile image
2534
8 Replies

I dont want emails from PMR, but do want them from VasculitisUK

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2534 profile image
2534
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8 Replies
PMRpro profile image
PMRproAmbassador

No idea at all - other than leaving the PMRGCAuk community. I can't see an option on email notification to pick and choose between communities. Maybe ask HU - via the Support option - see the black strap line at the bottom of the page.

DorsetLady profile image
DorsetLadyPMRGCAuk volunteer

As PMRpro says, if you select “receive email notifications”, it covers all communities you have joined. System is not clever enough to be specific to each community. 🤦🏻‍♀️

Megams profile image
Megams

~Excuse my ignorance but what's the difference between the two? Thought they were one in the same? ~

PMRpro profile image
PMRproAmbassador in reply toMegams

The forums - and no, they are not the same. VasculitisUK rather looks down on PMR and doesn't appear to consider it a vasculitis although they would claim any GCA cases as theirs! Political history ...

PMRCanada profile image
PMRCanada in reply toPMRpro

Hmmmmm….interesting! Our Vasculitis site here doesn’t recognize PMR either, but lots of relevant resources for GCA members.

PMRpro profile image
PMRproAmbassador in reply toPMRCanada

Obviously both very out of date ...

Sharitone profile image
Sharitone

🤣 the rheumy told me GCA and PMR are on a spectrum, ie different manifestations of the same disease.

Constance13 profile image
Constance13 in reply toSharitone

I totally agree! Mine (PMR) is long lasting (10 years so far) and 'different' from others on the forum. Different in that my bloods don't stay stable for

long. I keep hoping, but......!👵🏻

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