Anyone of you lovely people onStatins and taking Pred. Is it OK.

[Harrywogan]

May have to start taking statins.for cholesterol and on 4mg pred.Not happy xx

[jinasc]

Try this - bowl of proper porridge plus one whole orange every morning for breakfast.

This was advice to my cousin who had a small stroke and the stroke clinic said to her, exactly what I have just written to you. The cholesterol came down within six months to 4.7.

The orange must be a whole one, not just the juice.

[Harrywogan in reply to jinasc]

Jinasc will give the porridge a try xx

[Sharitone in reply to jinasc]

Does the orange interact with the porridge in some way? Or will the porridge do on its own?

[Harrywogan in reply to Sharitone]

Mmm not sure x

[jinasc in reply to Sharitone]

I don't know why, but it did have to be a whole orange.

[PMRpro Ambassador in reply to jinasc]

Whole as in not juiced - to keep the fibre which is the secret.

[jinasc in reply to PMRpro]

One of these days I might just remember what you have told me before. You jogged this disfunctional memory today...

.

[PMRpro Ambassador in reply to jinasc]

[DorsetLady PMRGCAuk volunteer]

I was on statins long before GCA - about 14 years or so and took them all through my Pred days (so best part of 20 years in total) ….no issues, although it did take 3 attempts to find brand that suited initially.

Came off them at the end of my GCA journey - different GP did suggest I went back on them about 18 months ago, but didn’t agree with me this time around - so not now.

[Harrywogan in reply to DorsetLady]

Thanks DorsetLady won take them if I can get it down by myself.x

[DorsetLady PMRGCAuk volunteer in reply to Harrywogan]

You certainly can try as jinasc suggested or look at BHF site - linked for suggestions -

bhf.org.uk/informationsuppo...

[Harrywogan in reply to DorsetLady]

Got it down to 5 3years ago and then had a big hit on cakes, more sensible now never go near bakers but my husband can eat 3 mincemeat pies for morning coffee and his is only at 3 not fare .x

[DorsetLady PMRGCAuk volunteer in reply to Harrywogan]

Not it’s not fair, but being on steroids probably won’t help either!

[Estellemac in reply to Harrywogan]

My sister and husband brought theirs down through diet but mine didn't budge. The doctor said it familial as my Mum had it. Weird my sisters don't.

[PMRpro Ambassador]

I don't take a statin despite raised cholesterol - it made me too ill in terms of PMR-type symptoms. That is with the approval of my cardiologist.

[Estellemac]

I am I think high cholesterol is a silent disease and do me more good than harm but that's just me.

[Harrywogan in reply to Estellemac]

Thanks Estellemac good to know x

[nallufl24]

I had terrible muscle pain on statins. I’ve tried 3 different ones and eventually they all caused problems. I take nothing now. Trying to control with diet but haven’t been too successful

[Harrywogan in reply to nallufl24]

Thankq for your reply

[Bcol]

Hi Harry, you will get conflicting answers here. I've been on a low dose 5mg of Rosuvastatin for many years now, long before PMR decided to join my party. However it took me three goes with different ones to find one which didn't play merry hell with my joints.

[Harrywogan in reply to Bcol]

Thanks Bcol all good to know, will help me make up my mind x

[Koalajane]

Hi I am on statins and they are okay for me

[Harrywogan in reply to Koalajane]

Thats all good to know thanks Koalajane.x

[winfong in reply to Koalajane]

Here's another one on statins (simvastatin) & no issues

[seamaid in reply to winfong]

snap I am the same, I have been taking them for years and no problems

[Ana-16]

Hi. I’m on 10 mg statins because post cancer treatment can raise cholesterol. No adverse reactions so far. Sometimes I feel like the old lady who swallowed the spider. Take one medication to cure or manage one condition and something else pops up which needs more medication which then causes something else snd so it goes. Still as long as these conditions can be controlled…. however my pill box is running out of space

[Harrywogan in reply to Ana-16]

Yes I understand how you feel Ana -16 thank q x

[Muffin2019]

Been on 10 fir 15 years with a low fat diet and no problems when on predisone for last year.

[Orla1968]

I have been on statins , simvastatin for many years. On Pred for last few months. No problems, all ok for me.

[Pixix]

Yes, for many years, familial cholesterol problems, no improvement with diet or weight loss. No problems, side effects, &no change when PMR started two years ago. They brought my cholesterol down quickly.

[Harrywogan in reply to Pixix]

Thanks Pixix good to know x

[Broseley]

I'm on atorvastatin. I initially blamed it for the joint and muscle pain and came off it, but no effect. Then I was diagnosed with PMR and now I'm back on it again, but a lower dose plus 30mg pred. No problems, yet!

[Harrywogan in reply to Broseley]

Good to here how other people get on with taking it .Thanks Broseley x

[petros31]

Atorvastatin 20 mg and 5mg pred coexist very happily

[Harrywogan in reply to petros31]

Good to Know,dont want anymore muscle pain it's bad enough with PMR.thank q xx

[Bubble56]

Because of recent heart problems and high cholesterol I was prescribed statins but after a long discussion with our practice pharmacist decided not to take them- I simply cannot bear the thought of any more muscle pain which can and often is a side effect!!!! Check what your HDL and LDL levels are in your combined cholesterol level... that can make a difference to your decision!

[Harrywogan in reply to Bubble56]

Thats good to Know,Bubbles thanks x

[Marcy47]

I have been on Statins for 3yrs, currently on 8mg Pred. No ill effects so far.

[Harrywogan in reply to Marcy47]

Good to know Marcy47 take care x

[Kafkaontheshore]

Hi. Yes had to start statins eventually earlier this year as diet etc didn’t do the job. Started on atorvastatin but one of my liver enzymes went a little over normal limit so now on pravastatin. Been slowly increasing dose. No problems at all. Been on steroids four years and over 20mg Pred when started. Good luck 😀

[Harrywogan in reply to Kafkaontheshore]

Thanks for replying gives a good insight to how things can go. Take Care

[MrsNails]

Hi Kafkaontheshore & Harrywogan Same with me - l’m on 20mg Atorvastatin & haven’t noticed anything except a drop in my Cholesterol Levels - getting levels repeated with next MTX Bloods

I was so against statins but my GP made a compelling case so with being diagnosed with Angina & on Meds for that it made sense to try them……

[Harrywogan in reply to MrsNails]

THANKS MrsNails will remember all you have said and will keep your post and reading again. TAKE CARE X

[Dickeyboy]

Hi Harry, been on atorvastin for many years and increased dose from 10 to 20 about 3 years ago. Started pred 15mgs may 2020 and down to 1/1.5 this month. No probs I thought but now got heart chamber fluttering picked up by pacemaker check up. Still awaiting to hear my next move from GP. Cant really say that statins and pred have been the problem.Should have added I have porridge with semi skimmed milk 6 days out of 7 a week but with a few blueberries and a banana with a topping of greek yoghurt with cultures.

[Harrywogan in reply to Dickeyboy]

Hi Dickyboy have now started porridge every morning and have a few nuts can get boring,and have to say doesn't help my toilet function lol take care xx

[DorsetLady PMRGCAuk volunteer in reply to Harrywogan]

Try fruit with your porridge!

[Harrywogan in reply to DorsetLady]

Will do, and thankq,sometimes I think dynamite lol xx

[Harrywogan in reply to DorsetLady]

Think I need to drink more water than red wine but the wine helps.lol xx

[DorsetLady PMRGCAuk volunteer in reply to Harrywogan]

Few more options for porridge toppings -

bhf.org.uk/informationsuppo...

- many of which will help with other issue, as may flax seeds…and more fluids (not alcohol that dehydrates, nice as it is!)…so for each glass of white, a glass of water!

But having said that, for me grapes in their natural state work wonders….and figs!