Seen Rheumatologist for first time : Yesterday I... - PMRGCAuk

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Seen Rheumatologist for first time

Uglow profile image
6 Replies

Yesterday I seen a rheumatologist for the first time as my Gp been looking after me. He said let’s get a plan! First thing is my X-rays on spine show crack that’s why my back is so debilitating! Says the pain is probably not linked to PMR. I was on 17.5mg prednisone he’s put down to 15mg said I need to go down slowly as my awful brain fuzzy fog contributed by prednisone. He said all my other joints are good. So summery on a plan to reduce to see how I get on. Recommend swimming as soon as I’m able and Pilates for back. He said my Gp doing a great job taking care of me. So many test been done. And she calls every couple weeks To check on me. He told me I may get odd pains flare up due to reducing. Any feedback welcome. Thank you

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Uglow
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DorsetLady profile image
DorsetLadyPMRGCAuk volunteer

Good news, just make sure you know the difference between steroid withdrawal pains and a flare.......his description of “odd pains” is a bit wishy washy.

If you’re not sure - this should help you decide-

healthunlocked.com/pmrgcauk...

Uglow profile image
Uglow in reply to DorsetLady

Thank you for help

123-go profile image
123-go

It's good to hear that your appointment went well. You seem more positive in your outlook after that. Always a good thing when the doctors listen and are open to discussion. I hope you'll be able to take up the activities you mention soon and that your SLOW taper goes well. 😀

Viv54 profile image
Viv54

Great news sounds like your on track !

Snap! I saw a rheumatologist for the first time yesterday as well. She was surprised how hands off my GP had been! Luckily she’s a fan of the slow taper, not quite as slow as recommended by our gurus here but I intend to work on her if necessary. Good luck with your tapering x

Uglow profile image
Uglow in reply to

Thank you. Good luck you too x

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