Jinasc...you didn't think I looked 80? If you could see me now~~! I do!
I miss you all, and read your posts but it has been a long road and I'm still not positive where I am. I've added the delicacies of isosorbide and Lipitor to my list BUT I'M ONLY TAKING 13 MG OF PREDNISONE PER DAY along with Actemra. I'm scheduled for a few more tests, a cardiac MRI a few others. So far I have bradycardia, slow heart rate, (that's all) but here is one area of the heart that doesn't seem to be getting sufficient blood flow ...so I do almost nothing for a day and then nothing. My oxygen level and heartbeat are erratic and I am very short of breath. Balance...it is a balancing act.
Just checking in...I see all the good work you continue to do and the people you help. I'm a tad late...but Happy Easter and Happy Passover to friends of the Jewish faith.
I'm being patient and if necessary I'll turn into 'a lazy bum' who only eats, sketches and paints. 💖💖 Would that make me a slacker?
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Grammy80
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Sorry to hear of your heart problems. You are certainly not being a slacker. You have to take care of yourself. Your sense of humour shines through and I'm sure that will help you along the way. I hope things improve for you with your new drugs.
Hi Grammy. We’ve missed you too. I am sorry that you have these health concerns and are becoming a lazy bum and a slacker. Of course you are not!!! 😂😂😂😂 I know the feeling though. It’s winter that does it. You can feel yourself unfurling as the signs of spring increase. Good luck with all those tests. I know about the doing almost nothing and then nothing and the scary breathlessness. I sincerely hope that they get your dear self more comfortable too. I see you are giving the old Actemra another chance. I am still with it and 10 mgs of Pred. I don’t feel that marvellous though. Wonder drugs!
The painting, sketching and eating would suit me. I have a little daub now and then. Never looks like it does in my head though. 💖💖💖💖
Eating and painting sounds good!!! Hope you get to the bottom of things. Nice to wave a very magic wand sometimes and sort everything. Good to hear from you.
Hello Grammy80.So nice to see your familiar name pop up again. Your resilience and fortitude shine through and both are a positive example to all of us. I admire your determination and strength in the face of all you have had to (and continue to) endure and "being a lazy bum" who "eats, sketches and paints" sounds pretty much ok to me!! 😉
As for looking your age or not....be it 50, 80 or 100, I truly think we all look exactly how we're meant to look. Every crease and wrinkle tells a story and is a kind of map of our life.....a bit like the physical scars left from injury or surgery. We may not always think of these as being aesthetically attractive but we're no less beautiful for their presence. I see our visible appearance as merely a curtain from behind which our true beauty is discovered. You seem a lovely, beautiful lady who's spirit and humour amidst all your trials and tribulations has certainly brought me some hope and encouragement ....... to believe that even in the most challenging of times, there's always a way to get through.
Put yourself first, rest as much ....and more.....than you need to and just go and enjoy being the biggest and most beautiful lazy bum that you can be!😃
Kendrew, That was so beautifully said; I believe the same. With every challenge, there seems to be a process of frustration, acceptance, and an opportunity for growth.
At the end of the day, we are what we have faced and how we have handled it. People enter our lives when we need them most. One of the most wondrous things for me has been meeting the people on this forum. When I joined the forum, besides learning, I realized how very fortunate I am. I'm in awe of the brave souls here and am so grateful and proud to be among all of you~! When my supply of will gets low, I can always find a real champion here💖.
I agree completely Grammy. On those days when I'm feeling sorry for myself and everything begins to overwhelm me, I take a step back and take a moment for gratitude..... gratitude for all the 'positives' in my life. Yes I have challenges, but life could be a whole lot worse. Becoming a member of this forum has opened up not only such a whole new world of knowledge and information but a whole new world of friendships too. Like you, I'm in awe of all the wonderful people who share there time and experience on here in order to support and reassure us. ❤❤
Good to hear from you. As others have said, you need to take it easy and do what you enjoy when you feel able. Hope the scheduled tests throw more light on your symptoms. Sending you all good wishes xx
You are one of my heroes and I wish I could take you, ane bd your knowledge, to the Doctors with me!! I have a friend in Maine who is a PA and she helps me ask the 'important' questions. Love her attitude too, it is like yours; just matter of fact but with compassion. Don't want a pity pot in my house~! Give me the bottom line so I can deal with it and go forward. I just want to maximize the quality of life.💖
Grammy, I have to say that with all you've been through, a lesser person would be lying in the gutter looking up at the curb. Take a rest and get better.
Good morning ( here at any rate) Grammy, so sorry to hear of your latest problem. Hopefully they will get it sorted soon. Nothing whatsoever wrong with taking life a little easier and as you say " indulging in what I love". I am relatively new here but from what I've read I would guess that you are probably overdue spending a lot of time on looking after you. Kendrew*s beautifully written words say it all, and I couldn't agree more with the words about the folk on this forum, take care and look after yourself.
I'm so glad you are here. I'm so glad I'm here.....👩🏼🤝👩🏼👩🏼🤝👩🏼👩🏽🤝👩🏻👭👩🏼🤝👩🏼👩🏽🤝👩🏻the Forum is such a resource and 'a soft place to fall'....I want to share it with the world. 💖
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And working really hard on looking after yourself for once.
Back to 13mg 
PMR back
Relapse, and now I'm sure I'm a member of your elite club
