Been 5 months since I zero'd out after three years starting at 20mg prednisone, still have a few achy days, smaller joints of hands, wrists mostly, some shoulder but some of that is OA and can be handled by NSAIDS and Tylenol for the most part...I recently pulled an upper back muscle which hurt like hell, and I felt perhaps a flair coming on...went on pred 5mg for a few days with the Doc's blessing and nothing really became of it other than a pulled muscle...so not back on...there are days when I'm still not sure whats going on, I'm leaning toward late onset RA maybe because of the smaller joints being affected but nothing the Doc thinks is severe enough to warrant much further testing and I don't think so either...im trying to get back some strength and muscle after 3 years or so of PMR and prednisone, a long process...Prednisone never really gave me any huge problems and its a wonder drug for PMR that for sure..if anything ever rears its head again I will try to see the dreaded Rhumey....its very hard to get in to see one around here anyway, I would opt for a large med center such as Mayo's or such...of course this pandemic also has to end or let up.....here's a couple of links that may or may not work for people newer to the game...they are both "O.K." I've seen and read lots of articles over the years and there are some real good ones out there to try and understand whats going on with your body....
Sounds a positive and good read especially for someone like me who was diagnosed with pmr in November 20. A newcomer. Hope you continue without too many problems and good luck USA with your new beginning. 🌹🌹
Just watched both - in general very good...a couple of points.
First link - Dr Boulos - good to hear tortoise & hare analogy and that slowly does it - but slightly concerned that he says in 90% of patients PMR is gone in 1-2 years - a tad optimistic perhaps. Pity he didn't also mention that untreated PMR "can" lead to GCA.
Second link - Dr Soloway - good - nice to hear that "a bad doctor only goes on blood tests" - the patients and symptoms must be addressed...and that he does refer to GCA as an emergency illness.
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