No Prednisone

[Gary1310]

I have been off Prednisone for 11 months. I am OK, but still have weakened leg muscles and walk funny...bumping into things. Another problem is with Wha I believe ( no doctor yet) is Lymphatic Colitis. The problem started in August, 6 months after stopping Prednisone. In doing my research I did find a connection to PMR. I had a lot of swelling before the diagnosis of PMR, Had swollen feet and hands and legs. I wonder if the inflamed bowel is part of the healing process.

[SnazzyD]

Have you tried dietary changes to rule out the usual culprits like dairy or gluten? However, really any change in bowel habit needs investigation because a variety of things can manifest as a bowel upset.

[Gary1310 in reply to SnazzyD]

Yes, I have done so. TY🌹

[herdysheep]

I can not offer anything helpful re bowels, but I do use a balance board to improve leg muscles and balance. More useful than I thought it would be!

[Gary1310 in reply to herdysheep]

TY 🌹

[PMRpro Ambassador]

Good to hear you are still off pred.

If you mean this paper:

ncbi.nlm.nih.gov/pmc/articl...

I'm really not sure that having 2 patients in a cohort of 171 can be seen as a link - correlation is not causation. If you mean this

ard.bmj.com/content/74/Supp...

then the link is with autoimmune disease in general rather than PMR in particular.

I don't think inflammation of that sort would be part of a healing process either.

One question that has to be asked is whether it was really "just" PMR as there is a form of inflammatory arthritis that is associated with the gut. There are also a few people who have developed gluten-intolerance along with PMR - have you tried a gluten-free diet for a couple of months? I, OTOH, don't have a problem with gluten but modern commercial wheat causes problems for me.

[Gary1310 in reply to PMRpro]

Appreciate the information. One article, I read, specifically mentioned PMR. I understand much research needs to be done on this condition. I am able to control my problem with Metamucil, however, I wondered if there were others experiencing that problem. I thought perhaps, as my body was healing, there was a process to eliminate all the excess Lymphatic fluid that I had accumulated preceding my PMR diagnosis. I am less swollen and that is a blessing. My feet and hands are now more normal...Thank you..🌹