**** no PMR !!!***: ***UPDATE*** So I refused... - PMRGCAuk

PMRGCAuk

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**** no PMR !!!***

Aries789 profile image
14 Replies

***UPDATE***

So I refused pred after last blood test showed PMR markers had dropped to just above normal. Changed HRT , which has been the best thing since sliced bread, got a B12 injection, take vitD& K2 drops & shed 17lb. . Guess what ? My last blood test came back normal !!!! So no PMR, & probably never was ! I am so thankful for this group, without the knowledge I have gained from you all on here I would’ve gone along with GP and taken steroids , & would never have known I didn’t need them !! Spoke to a GP who specialises in menopause who said oestrogen is a natural anti inflammatory & would certainly bring inflammatory markers down ! My own GP was quite snotty that I went against his advice I am now sooooo looking forward to a chat about my latest results 😂 To you all on here , thank you for sharing your knowledge & different journeys & I wish you all the very best for a pain free, pred free future xxxxxxxx

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Aries789
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14 Replies
Telian profile image
Telian

Congratulations Aries.

Interesting about the oestrogen - my BC was oestrogen fuelled and the cancer drug I take keeps it at bay.....

PMRpro profile image
PMRproAmbassador

Long may it last!

tangocharlie profile image
tangocharlie

Fantastic news that you don't have PMR!

Sandradsn profile image
Sandradsn

That's great news! Are you completely in free?

Aries789 profile image
Aries789 in reply to Sandradsn

Yes I believe so , not managed to speak to GP yet as I’m on holiday , but my inflammation markers are in normal range . Specialist has told me I have arthritis in feet, awaiting bunion op. But had issues with feet & knees for years. That’s why I didn’t think it was PMR, none of my symptoms came on within a few weeks & I have never had to take pain killers . I think my markers increased with menopause & HRT has brought them down . Plus I have drastically changed my diet .

Jackoh profile image
Jackoh

Pleased for you. Hope you continue to feel well💐

Amkoffee profile image
Amkoffee

I was on hrt a few years ago and they were wonderful. I felt 30 again. But unfortunately I got a DVT and had to stop them.

Aries789 profile image
Aries789 in reply to Amkoffee

That’s not good . I’m on the topical gel which is much safer than pills & Utrogestan, which is the nearest to that our bodies produce progesterone wise. I did have to tell my GP what I wanted lol

Daisyfield profile image
Daisyfield

I think this is v interesting. My PMR came on perimenopause and fluctuated if I had a period.

Oestrogen is anti inflammatory....so is my PMR in part due to reducing oestrogen levels? I have quite a few friends at this stage of life who have developed Other inflammatory diseases...and the fact that more women than men get PMR might suggest sex hormones have a part to play?

Would my PMR respond to HRT instead of steroids? (I think the diagnosis is right with me.)

Aries789 profile image
Aries789 in reply to Daisyfield

I am taking HRT for the many health benefits NOT symptoms . Research it , good for your bones , mood , research shows low oestrogen is linked to Alzheimer’s, anti inflammatory, energy levels .... My achey joints started in my 40’s, when I was peri menopausal, but I didn’t know what that was at the time . Google the menopause doctor ... she is brilliant . People are scared of HRT due to cancer scares from research that has been proven to be flawed. Oh & did I mention brain fog ? I feel normal again , I have my memory back & my self esteem. Apparently we should start on HRtT BEFORE Tthe menopause. I have to also say that I changed my diet & im sure this has played a major part too x

Daisyfield profile image
Daisyfield in reply to Aries789

Yes I think I need to improve my diet. It’s slipped back a bit.

PMRpro profile image
PMRproAmbassador in reply to Daisyfield

No way of knowing - my PMR started a few months after I stopped long term HRT, which I'd been put on for various symptoms including fatigue and sweats, one scare too many. I've often regretted doing so but never tried to negotiate a return, Bit late now probably!

Daisyfield profile image
Daisyfield in reply to PMRpro

The body is so complicated isn’t it. I’m sure there are so many factors at play.

PMRpro profile image
PMRproAmbassador in reply to Daisyfield

Oh yes! You do have to have a bit of sympathy with doctors and all the systems they have to learn about. But they could get some of the basics better sorted ;)

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