PMRpro,
I added 800 mg of ibuprofen last night and today, upping the prilosec to protect my stomach. I have a similar history of mis dx as you. Had to take 10 mg of Valium each time. It helps but l am still hobbling with a walker.
I was dx’d with fibromyalgia in 1993 at age 48 after going through RAI 131 for Graves and surviving a terrible car accident the same day.
All neck and shoulder and back pain has been attributed to that accident but the PMR was totally missed as my SED and C Reactive Protein and inflammatory markers have always been normal. I landed up in hospital with thyroid storm. PMR can be brought on by trauma.
Thought I had a PhD in pain tolerance but this current episode has been devastating. I am now thinking it is not related to prednisone reduction as muscle relaxant helps somewhat. Dr says extreme muscle spasm. I am sleeping in recliner as I wake up screaming in pain when I have tried sleeping in our bed.
If by Monday I am not out of pain, l will request MRI. It’s easy to attribute everything to PMR-GCA but l think this may simply be my de conditioned self trying to lift something too heavy.