Thank you so much to everyone who has replied - i am so glad I found this site and will continue to check in and read comments from others in the same situation as myself it is so helpful to hear other people’s stories and learn more. Until 4 weeks ago I had never even heard of either pmr or gca - it hit me almost overnight - only symptom prior was aching thighs for a few days then one morning could barely get out of bed!!! I have no upper body symptoms it’s all from my hips down. Took two weeks of pure hell and blood tests before doc diagnosed pmr and within less than 24 hours of starting Pred the pain had gone!!! I couldn’t believe it but then started the journey of reading up on Pred and all its bad press - however at the moment I have no choice as I was almost completely immobile and can now walk again so for me that outweighs the bad. I think I also may be fortunate as I started on 15mg and it worked straight away - doc said 6 weeks on that then back to see him so I am back just after new year - once again thank you so much for this wonderful site that has really helped me already 👍
P.S I am 54 which I believe is relatively young for this ?