Life with pmr/gca

[Spanky2019]

Many posts have been written over the past year by people lamenting the loss of abilities since dx. I've written my share. It all does get better, just not the same as we were, or as soon as we'd like. Hair falls out, most gain weight, everything changes. I try to make myself feel better from a quote from the little book The Velveteen Rabbit. "when you are REAL , shabbiness doesn't matter." Lol. So many things (and even a few toxic people) aren't a concern any more. As the story goes, I am becoming "Real" and that's a good thing. Thank you so much to all who have helped along this journey. Hope 2020 will be the best year ever for all!

[scats]

You can't beat a good dose of optimism first thing in the morning, thanks.

[_multistrada in reply to scats]

😂And some codeine

[Blearyeyed]

What a lovely post and quote , I'd completely forgotten about that book , as I hadn't given bedtime stories for many years and it's not as well used in the UK.

I will write in my notebook of inspiring stuff xxx

PS , a quote from one of my children's favourite books by Jez Alborough, "HUG!" 😘

[PMRpro Ambassador in reply to Blearyeyed]

I've been at 2 weddings where they read from it - more common than you think I suspect.

[SheffieldJane]

I read part of the Velveteen rabbit at my daughter’s wedding - not a dry eye in the house - especially the cameraman. 😍

[Spanky2019 in reply to SheffieldJane]

Yes, it's a lovely little book; filled with many interpretations & levels. Thank you for all your great replies to me and others. Best wishes!

[bunnymom]

I live a much simpler life and for that I am thankful. I don't believe that will change once I'm "well".

[Yellowbluebell]

I have to own to having never read the book. Have heard of it and heard odd quotes but not the full thing. Now off to check ebay and amazon for a copy.

[Highlandtiger in reply to Yellowbluebell]

I just did the same. Currently all of 49p for Kindle version!

[Yellowbluebell in reply to Highlandtiger]

Sounds perfect.

[Hidden in reply to Yellowbluebell]

No l haven’t read it either, must check it out for Charlotte 🐇

[Yellowbluebell in reply to Hidden]

Its probably too young for zach but i just fancy reading it.

[Spanky2019 in reply to Yellowbluebell]

That's the beauty of it. It's not too young or old for anyone. I think different interpretations at different stages of life, and probably, different learning stages.

[Yellowbluebell in reply to Spanky2019]

I will prob read it to zach then and see what he thinksx

[cool4bob in reply to Yellowbluebell]

Same.

[Spanky2019 in reply to Yellowbluebell]

Pg 37 . Enjoy your day.

[Yellowbluebell in reply to Spanky2019]

You have started a run on this book now!! Are you on commission?

[Spanky2019 in reply to Yellowbluebell]

Don't I wish!😊

[Slowdown]

There's a lovely audible version on YouTube, I've just had a relaxing time with feet up listening to it . Perfect excuse for half an hour of rest.

Here's the link: youtube.com/watch?v=6bmhDNT...(Not working as expected?) (hope this is allowed, all in the name of our wellbeing!)

[cool4bob in reply to Slowdown]

Saved me some time thanks Slowdown.

[Yellowbluebell in reply to Slowdown]

Wow thanks. Still want the hard copy as well but i always was greedyxx

[Slowdown in reply to Yellowbluebell]

Can't beat an actual book... I didn't read it, or have it read to me as a child but never too late to make memories!

Thanks for the post Spanky 2019.

[Yellowbluebell in reply to Slowdown]

Definitely

[Yellowbluebell in reply to Slowdown]

And yes its perfectly fine as its the verses we are using as encouragement to ourselves

[Iloveholidays in reply to Slowdown]

What a lovely story, I’ve just listened to it laying in bed 💖 a nice start to the day, thank you

[Highlandtiger in reply to Slowdown]

Thanks. I listened last night. A lovely story and beautifully read by the narrator.

I don’t remember knowing about it as a child at all.

[Slowdown in reply to Highlandtiger]

Yes, he has a very soothing, clear voice - he'll be wondering where all his extra listeners have come from!

[V1a4 in reply to Slowdown]

Thank you , nearly 77 and never read this!

[katiemills]

Thank you Spanky2019 and Slowdown , I’ve just listened to it ( as you do at 4 am) . Lovely bedtime story !

[Spanky2019 in reply to katiemills]

Maybe the answer to prednisone induced insomnia are bedtime stories.

[casca312 in reply to Spanky2019]

So enjoyed listening to this sweet story. Relaxed me for a ti me having just been diagnosed yesterday with a relapse of GCA and feeling a little glum, particuarly as we should have been enjoying the sun in Malibu with our son and family. Thank you for bringing it to our attention.

[Spanky2019 in reply to casca312]

So sorry to hear of gca return. Hope you can recover soon. Wow! Malibu would be fun, beats Wisconsin. Whatever you do, wherever you are, Happy Holidays!

[Annimac]

Thank you for this lovely post. I have recently bought the book for my granddaughter for Christmas . I had heard of it but never read it. Made me quite tearful. Thanks again xx

[Spanky2019 in reply to Annimac]

Didn't intend tears but always wish the best day ❤

[Hidden]

Sorry what is DX?

[Highlandtiger in reply to Hidden]

Diagnosis

[Spanky2019 in reply to Hidden]

Dx=diagnosis. Px=prognosis Tx=treatment Have a great day

[SusanJF]

Just beautiful, thank you! 🐰x

[Devonspinner]

What wonderful words. I have never read the book but just bought it in Amazon to read to my grandsons over Christmas. Thank You x

[Mimma]

Great way to start 2020 - All the best to all in our group

[Evercurious]

Lovely way to start the day. All the best to you, and to all of us, in 2020!🎉🎊🎏🎊🎉