Aunty Bees Advent Calendar. Dec 16. Travelling wi... - PMRGCAuk

PMRGCAuk

20,741 members β€’ 38,996 posts

Aunty Bees Advent Calendar. Dec 16. Travelling with Chronic Pain. Like a Puppy , Pacing is for Life , not just for Christmas! And a quiz!

Blearyeyed profile image
Blearyeyed
β€’38 Replies

I have been working on a post of tips for travel today , but while I have been checking all my facts , my mind began to wander , as it does for Us all , flipping Brain Fog!

At first the thought sprang to mind that I hoped that everybody knew that most of the tips and tricks that I was offering up behind the doors each day weren't just useful for Festive Pacing , but , were basically , just the Pacing Techniques that we advise all year around , just given a Festive Air.

I then thought , perhaps a post about the Travel Tips on our biggest journey might be helpful today instead . That journey , of course, being the one we travel with GCA, PMR or Chronic Health issues of any sort. As , just like a Puppy , Pacing to cope with our daily needs isn't just for Christmas , it's for Life!

For Life , Aunty Bee , but we won't have PMR , GCA forever , what the heck do you mean??!!!😨😨😨😨😨

Well , relax All and read on and you will begin to understand what I mean.

Most of us go through a transition period when we get a new Chronic condition like PMR or GCA , when we feel forced to adapt our Lives to accommodate our Symptom needs , and we all feel frustrated by it . Yet , if we turn the situation on its head , even though the timing of making Adaptions was forced upon Us , the Process can actually be a very positive and invigorating thing.

Pacing Yourself , and Changing your Routines , to accommodate your Health needs doesn't mean that You have stopped being You ; or You have stopped being "Normal".

Just like Pred is not a " Cure " but a Control Method for Chronic Pain ; Pacing is just a practical tool it's not a Crutch .

It just means that you have made a practical choice to be honest about your Body , it's needs and limitations , and taken sensible steps to adapt your Routine to replace the " Old Normal" with a " New Normal" to make Day to Day Life a bit easier.

With the " Old Normal" we would ignore the warning signs our bodies gave us and push beyond the limits it could cope with , sure , that we could make up for it later when the deeds were done and everything would be fine. It wasn't ever really good for us.

Then PMR, GCA or any other of our long term Body changes or Chronic Illnesses arrived on the scene , our bodies finally needed to scream at Us to stop the old patterns to accommodate them.

With the " New Normal " we just choose to adapt our Routine to accommodate our Health Issues , improve the balance we achieve between Activity and Rest , and decide to respect the limits that our bodies can cope with . And then, by choosing not to make the same mistakes that we did in the Past we prevent triggering Flares , and , the increases in Prednisone that go with it.

It's a positive choice for Life , not some sort of Personal Defeat, and helps us to reach our Destination a lot quicker , and do it without a lot of delays and diversions on the way.

From the Aunty Bee book of , "Searching for the Silver Lining" , Pacing becomes a good thing . Rather than resisting Change it suggests it is worth embracing it instead. Not just for Christmas , or even for the Time your Illness runs its path , but to help create a stronger , more balanced Everyday Routine for Life . Long after , PMR , GCA or any other Chronic issue has left the Station.

By turning the " New Normal " into a Life choice it opens your heart to viewing your Self Care adjustments into just another positive step in Taking Care of Ourselves.

You realise that the changes in Pacing your choose while your Body changes are chosen no differently than all the Positive Steps you took in exploring new styles of Life , Exercise , and Diet, throughout your Life . The motive for doing it isn't really that different either , it's still just a step we choose to take to have a healthier body and improve our Life.

So , any tips or changes you need to take along the road called Route PMR / GCA , or Highway RA or OA , even Avenue Fibro or Hip Replacement Avenue , are just like Travel directions that make your journey easier to our regular work each day.

Most importantly , it's nothing we have never done before when we had the chance , often at this time of year, as we look at the road ahead and make our Resolutions for a New Year. Don't believe me , just look at the bunch of Self Help books , Recipe Books and more that are gathering dust on your shelf , or compare the exercise and hobby equipment you use now to the stuff that you keep in the back of your shed.

We have always been Proactive , Practical and Sensible folks that want to Live our lives Pain and Stress Free. Pacing is just the ultimate Lifestyle Choice that you finally found after years of searching.

And one last thing , remember , we are more than a name , a label or a tag. We aren't Sufferers , not even Survivors , and definitely not Victims in any way at all . It's Simple , We are just Humans with Health Issues , Big and Small .

β›„β›„β›„β›„β›„β›„β›„β›„β›„β›„β›„β›„β›„β›„β›„β›„β›„β›„β›„β›„β›„β›„β›„β›„β›„β›„β›„β›„β›„β›„β›„

But Now , for what you all came here for , today's Travel Quiz , the answers will be on tomorrow's Travel Tips Post but what is the question.....

Look at the photo above and tell Aunty Bee ,

Which lucky Capital City's Citizens get to travel to work on a Metro system that looks as Festive as this ?

There will be extra points if you can also name the particular station .

Good luck All , and Keep Pacing , Aunty Bee xxxx

β›„β›„β›„β›„β›„β›„β›„β›„β›„β›„β›„β›„β›„β›„β›„β›„β›„β›„β›„β›„β›„β›„β›„β›„β›„β›„β›„β›„β›„β›„β›„

Written by
Blearyeyed profile image
Blearyeyed
To view profiles and participate in discussions please or .
Read more about...
38 Replies
β€’
scats profile image
scats

On the subject of pacing, where do you get the energy to do this every evening?

Blearyeyed profile image
Blearyeyed in reply to scats

If you remember , I began doing them in the morning , the changes in time has been a symbol of Pacing itself!πŸ˜‹πŸ˜

You could end up getting Dec 24 on Boxing Day if I keep getting later xx

scats profile image
scats in reply to Blearyeyed

However you do it, I'll just go on enjoying them, thanks.

Now I need to go and lie down.

Blearyeyed profile image
Blearyeyed in reply to scats

Yep , definitely Pace Yourself!πŸ˜‹πŸ˜˜πŸ˜‚πŸ˜‚πŸ˜‚

PMRpro profile image
PMRproAmbassador in reply to Blearyeyed

Better start on next year's in January - 2 a month all year ...

Blearyeyed profile image
Blearyeyed in reply to PMRpro

Ultimate Festive Pacing , but a good idea actually , I could get creative early, like those Christmas Advert execs and Christmas song producers , they always tell tales of doing it all in July !πŸ˜‚πŸ˜‚πŸ˜‚

PMRpro profile image
PMRproAmbassador in reply to Blearyeyed

But then you'd probably lose them all ...

Blearyeyed profile image
Blearyeyed in reply to PMRpro

I will send them to you and others to hide somewhere , surely one of us would manage to remember where we put it and beat the Brain Fog !πŸ˜‹πŸ˜‚πŸ˜‚πŸ˜‚

PMRpro profile image
PMRproAmbassador in reply to Blearyeyed

Wouldn't guarantee it ;)

Blearyeyed profile image
Blearyeyed in reply to PMRpro

πŸ˜‚πŸ˜‚πŸ˜‚πŸ˜‚πŸ˜‚πŸ˜‚πŸ˜˜

Yellowbluebell profile image
Yellowbluebell

Russia and Moscow

Blearyeyed profile image
Blearyeyed in reply to Yellowbluebell

Possibly ....

piglette profile image
piglette

Could it be the Moscow underground, Komsomolskaya station? It is quite incredible. At night the cleaners are out cleaning the floors often on their knees. In fact the Russians were always washing the streets as well. I love the chandeliers. The initial project was made by British engineers (due to their experience gained while working on the London tube system) and was built by forced Soviet labour. Apparently the British engineers were then put in prison on suspicion of espionage. Good old Stalin!! It is supposed to be the most crowded underground in the world.

Blearyeyed profile image
Blearyeyed in reply to piglette

It might be ! I can't give it away yet , answers tomorrow on the Travel tip post , love the story you just shared with us though , really fascinating . Thanks for joining in , and don't forget .... Keep Pacing !πŸ˜‹πŸ˜˜

Blearyeyed profile image
Blearyeyed in reply to piglette

Now that I have been able to give you your round of applause in today's post for getting it right , I just want to say thank you so much for that amazing little story.

Plus , I do wonder how they manage to get these stunning photos in places that are always being used and busy.

Makes you wonder if there are a few thousand Russian Commuters trying hard to hide behind all the pillars !πŸ˜‹πŸ˜‚πŸ˜‚πŸ˜‚πŸ˜˜

piglette profile image
piglette in reply to Blearyeyed

большоС спасибо вам

Blearyeyed profile image
Blearyeyed in reply to piglette

Wow!!!

How do you get the right keyboard on your computer to do that , impressed xx

HeronNS profile image
HeronNS in reply to Blearyeyed

If on the tray at the bottom of your screen you see a language preference, like ENG UK, you can click on that and there is a place there to install pretty much any language which has a written form. I didn't know this until a couple of minutes ago. Thanks piglette for tweaking my curiosity.

Blearyeyed profile image
Blearyeyed in reply to HeronNS

Ooh! Thanks , I will have a twiddle , that sounds like fun

PMRpro profile image
PMRproAmbassador in reply to Blearyeyed

Or you can look up the phrase using a translation app and copy and paste ...

piglette profile image
piglette in reply to Blearyeyed

Magic!

TheMoaningViolet profile image
TheMoaningViolet

Moscow, Novoslobodskaya station.

Thank you for your lovely, cheering, daily hand-holding. I am new to this forum and I have already found it very useful in so many ways.

Blearyeyed profile image
Blearyeyed in reply to TheMoaningViolet

So , glad you are getting some help in your Early Days , I know this particular post will be really helpful and positive for a " Newbie" , it's those first weeks of making the changes that can make you feel the worst. Now you know you don't have to !

I love your name by the way!πŸ˜‹πŸ˜˜

Keep Pacing ! xxx

Dilly-B profile image
Dilly-B in reply to Blearyeyed

Very helpful for a newbie. Thank you.

Blearyeyed profile image
Blearyeyed in reply to Dilly-B

Great I hope it helps , not just now but long after PMR has gone it's way , take care x

Yellowbluebell profile image
Yellowbluebell in reply to TheMoaningViolet

Very pleased you are findind the forum helpful. YBB

Omanain profile image
Omanain

Thanks for this Auntie Bee. I would like pacing to become my new norm as I have always been the sort of person who ''Must just finish this" or the best one ''If I do this now it will save me time later'' My mother in law once said I would meet myself coming back, which although amusing, is no way to live.

I wonder if being driven predisposes us to autoimmune disorders?

But disregarding my body must stop and I am grateful for your post. I hope you didn't drive yourself too hard to finish it.

Kate x

Blearyeyed profile image
Blearyeyed in reply to Omanain

Glad you liked it , I will freely admit , I was once a whirlwind too , it took years of painful mistakes before a realised that I could slow down and make Life richer by it.

Luckily , writing posts is something I can do whilst sitting and relaxing with a cup of something lovely so it's part of Pacing myself too.

Good luck on indulging in the " New Normal" , take care , Bee x

Rachael17 profile image
Rachael17

Thank you so much. I click on Auntie Bee every morning now! And today’s message was truly inspirational! So much common sense, and thinking outside the box.,,,I’ve read it twice already, and shall keep it for future reference.

Incidentally I’m a bit of an interloper on this forum, as I no longer have PMR ( had it from 2005 to 2015) , but have recently had my leg amputated, and am no stranger to Chronic Pain.

I wish you a Happy Christmas and a healthy, pain free New Year. May the ideas keep flowing! πŸ˜€

Blearyeyed profile image
Blearyeyed in reply to Rachael17

I'm sure you are far more of an inspiration to those around you after your Health experiences , you sound so bright and cheerful.

Interlope away , if the posts are helpful that is what counts.

Although , the PMR may have gone , you have learnt that all sorts of conditions involve Chronic Pain and involve the same needs and considerations when trying to find a way to keep positive and make Life Easier.

Please keep in touch , if you don't want to post , I'm happy for a private message too.

But keep joining in it is nice to hear from you xxx

Rachael17 profile image
Rachael17 in reply to Blearyeyed

Thanks Auntie Bee. Will keep in touch.,

PMRpro profile image
PMRproAmbassador in reply to Rachael17

We have a few non-PMRers - but a few more ex-PMRers would be welcome. You can tell the later sstory ...

Pixix profile image
Pixix

Prospect Mira station, Moscow? Probably not...but bleary eyed myself this morning! Good pacing words this morning, thank you! I haven’t reached the β€˜acceptance’ state yet, but am avidly reading how I β€˜should’ spend my life! While the weather is so lousy though, I’m burning all my energy in the mornings & crocheting the afternoons away & holiday planning. However, there’s always a time, around 5pm when I could suddenly drop fast asleep! Happy pacing day, S x

Blearyeyed profile image
Blearyeyed in reply to Pixix

You are getting there , and when Santa finishes his work you can Pace Romantically together off into the wide bus yonder for that Christmas holiday !

Wish I was coming with you !

Pixix profile image
Pixix in reply to Blearyeyed

Working on it! All of it!

Blearyeyed profile image
Blearyeyed in reply to Pixix

πŸ˜‹πŸ˜˜πŸ˜

jinasc profile image
jinasc

I use a different to way to explain to new people who encounter many things they hoped never to meet.

"You are marching to the tune of a different drummer. No drummer lasts for ever, they come and they go, but you never get exactly the first one back.

This does not only apply to chronic, auto or any other illness, it applies to ageing as well."

I used to be πŸ€Έβ€β™€οΈ now I am this πŸ‘΅ but with a 😁

Blearyeyed profile image
Blearyeyed in reply to jinasc

Lovely , saying Jinasc!

I'm hoping not to meet any drummers just at the moment as I sit here with my headache sock on .

That will teach me to try and play the role of fielder in a game of cricket with a bauble!

Hugs xxx

Not what you're looking for?

You may also like...

Auntie Bees PMR, GCA,and Chronic Pain Sufferers Advent Calendar. Dec 2. In the spirit of Pacing , a little Festive Fun. Where's the Snowman?

Fatigue Free Giving tips on Day 3. If you missed yesterday's post of Festive Pacing tips , please...

Aunty Bees Advent Calendar. Dec 21. Tis the Season to be Jolly Fed Up!! An unwanted Gift or two from my GP Appointment.

going downhill fast just before the Holidays are to begin. So I just want to wish you all a speedy...

Fatigue, pacing, spoons - and a gorilla...

la-in-your-house/ And don't just read them - think about how you can adapt/adjust/accommodate/accept

PMR, Prednisolone and Poland

some mild PMR/GCA symptoms, primarily because of the stress of traveling, change in routine, all...

Pred Hair (male) Head & Facial

interesting question I wonder wether any of our Male sufferers of PMR or GCA would help us with....