I have been on 1mg of pred for several months (diagnosed Dec 2016 and started on 15mg and have been slowly reducing since). I seem to have really good days when I feel like my old self but some days I cannot stay awake in the day. The tiredness just appears and I just sleep. I fall asleep when I am reading, when watching something really interesting on TV. Yesterday, for example, I had had a reasonably night’s sleep so offered to drive as for a change my concentration abilities seemed “safe”. I drove 45 miles, we did a couple of hours wandering about Porthmadog, having a bite to eat, some window shopping, and as I felt tired my husband drove home. In my opinion nothing strenuous but I couldn’t stay awake and slept most of the way home.
This seems different to the fatigue you get with PMR so your thoughts would be gratefully appreciated. Thanks