New rummy. And at 720a on my way to yoga - PMRGCAuk

PMRGCAuk

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New rummy. And at 720a on my way to yoga

Mjhollywood1 profile image
6 Replies

Went to my 9th rummy Starting as a new patient did not bring any records with me!!! Not only Pmr but I may have Spondyloarthritis Taking 7.5 meloxican 2 day with new meds in addition to my 4 mil predsone. And I was able to sleep all night and get out of bed. !!!! Hope this works! anyone else have Pmr plus. Something else in the arthritis family ? Off to bend my body 😉

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Mjhollywood1 profile image
Mjhollywood1
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6 Replies
HeronNS profile image
HeronNS

Don't overdo it, but enjoy!

PMRpro profile image
PMRproAmbassador

I know a couple of people who were first diagnosed with PMR, one even showed GCA symptoms, but it turned out to be ankylosing spondylitis which responds fairly well to meloxicam (unlike PMR) and for which there is a choice of excellent biologics for longer term management. One of the signals is night time back pain that happens earlier than is usual for PMR - so, sort of 1am or so.

piglette profile image
piglette

Are you saying you have PMR and started on 4mg of pred? That seems very low if I understand you.

Mjhollywood1 profile image
Mjhollywood1

No. 2 years later I am at 4 mg. Stop actrimra about 6 moths ago against the old rummy orders Did not like the way I felt and did not feel it was helping me with tapering down

PMRpro profile image
PMRproAmbassador in reply to Mjhollywood1

It wouldn't if you haven't got PMR but AS - different biologic required!

whitefishbay profile image
whitefishbay

I bet most of us on here have 'something else in the arthritis family'. Does gout in one toe count?

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