Good Morning! I would like to sincerely thank the HU PMR/GCA community for getting me through the past 15 months! Had it not been for the sound practical advice, heartfelt empathy, guidance, camaraderie and good humour, I would not have made it through many a dark night! Thank you!
Recently when my membership was restricted, I was overwhelmed with the outpouring of support and public outrage that many of you offered. Thank you, thank you, thank you, I cannot tell you what that meant to me!
I also thank those, who's voices I did NOT hear (made obvious, only because your voices are usually so very loud and clear); your silence, during that time, taught me a lot about you and about myself. Thank you.
For those of you who would like to keep in touch, I can be reached through a variety of sources;
Thank YOU Melissa for so many wonderful posts and sharing multiple aspects of yourself and your experiences with PMR and GCA which I'm sure I could not find anywhere else on this planet - your uniqueness, vibrant personality and intrepid character (in spite of it all ) made so many of my days not only more 'bearable' - but more importantly much more 'meaningful' !!! - the sign of a wonderful writer (in/of my books at least) XXXX
The courage, strength and conviction of your posts and blogs have been an inspiration Melissa. Thank you. You have always been and remain true to yourself and for that you have earned my utmost respect. I wiĺl continue to read your well written poignant blogs, so please keep them coming. Best wishes.
Dearest Melissa. I have not been fully right in the bonce over the last several weeks so if I failed you when you most needed support I am desperately sorry. I honestly cannot remember who I responded to and who I didn’t. But as I told you my worst nightmare was that I would fail to behave properly towards someone I care about. If I let you down I humbly apologise. I will try to make it up. It’s all a blur unfortunately.
Your blog pages have been profoundly moving and touched so many hearts. I still think of the content of some that went particularly deep.
You have given so generously of yourself and your experiences and helped so many of us.
It’s wonderful to know your op is behind you now and you can begin to look forward to easier times xxxxxcx
So thankful you have included all of your links so that people can still get the therapeutic help from seeing your writing or get to talk to you even if you won't be with us here.
I am sorry about the impact the changes are having on everyone and I know it has hit you hard at a time when you have alot of physical issues going on too .
I hope your recovery goes a little quicker and with less pain than it has so far , and I hope you can concentrate on the positives now .
Your writing and the FB page will definitely keep you busy and will give you and others lots of enjoyment , so there are lots of positives to hold on to , even if there is sadness in your decision .
All of that will be behind you very soon , and we know we can still pop over and see you go on to bigger and better things and get stronger everyday because of it.
Goodbye ☹️. Your humour, inspirational and advice will be missed on this site. I'll miss you and I don't think I'll be alone on this. But I will continue to read your blogs and look forward to them 😢
So Grateful for having gotten to know you and I will continue to FB you. It makes me sad you have had to go through this and you will be deeply missed on this forum. I'm determined not to lose contact with you and wish you all the good things your blog is bringing your way. Take care Melissa, you are quite the writer! Hugs to you sweet Lady.
Thankyou dear Mellissa for all your wonderfully written posts,you have helped us all so much,sharing your feelings and struggles with PMR/GCA.l am so pleased we can still keep in touch with you,all the very best Melissa,take care,much love Patricia xx.
I have to say Melissa. I am cross with you for giving up on us. We don't need the extra stress in our battle to get better. Hope you find your peace in your FB. Janette😊xx
Sad that you have decided to leave Melissa but you must do what you think is best. Thanks for listing your contact details as that means we can still contact you to see how you’re getting on. Do hope that you recover well from your knee operation and that the up and coming cataract operations will be a breeze. Take care. Xx
I don’t have PMR/GCA, but started following the group when my doctor was suspicious of GCA. I’ve since been diagnosed with GPA, which presents atypically. (I have inflammation of my temporal arteries.) During my journey, I came to enjoy the discussions and information found here. You all have been supportive and provided great insight. I was particularly drawn to “hidden’s” posts. For one, they were clever; two, from the heart; three, from a fellow American of Italian descent. Melissa, I follow your blog and have requested membership to the Facebook page. 👍💕
Good luck to you, this is so sad,,we are loosing contact with so many people we have regarded as friends, ,and got an interesting sight into all our fellow suffers lives, which does actually help deal with our problems, hope all your op's are behind. You now, will try and keep up with your bloggs, but, am quite hopeless with technology.
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Risk of PMR to GCA
Happy anniversary! NoT !!!!!!
