Hello, I am trying to taper from 23 mgs to 21. By day 4 I am in excruciating pain. I thought 10% as instructed here would be fine.
Could win kindly send the taper schedule for Dead Slow Don’t Stop method.
It’s been sent me before but in my condition I cannot seem to locate it. I do promise to put it in a safer place this time.
I have clinical diagnosis of GCA, so severe, unremitting headache fir 3 years now. I have tapered more successfully at 10% from 23mgs to 15mgs. But a recent flare had me creep up to 23/24mg. For 4 weeks.
Now, after four days at 21 - first thre are manageable, my whole body aches excruciatingly.
I went back up to 23 again. Problem is I have every steroid side effect in the book and a higher dose is also intolerable. What a razors edge! Misery one way or the other.
Any other advice is greatly appreciated. I seem to do best at 17mgs. Have been on that for a year. Seems high, yes? And it doesn’t cut the head pain but in half. It does, however abort all adrenal insufficiency symptoms of body aches and pains which are quite severe (that’s what drs say I am going through when I taper.)
I want to try the DSDS method.
Ps. This is a daily nightmare.