So , picture the scene over here at what my friends lovingly call , "The Asylum", if you will .
I am attempting to help my daughter create some party decorations for Halloween.
I am presently sitting here with a Gryffindor striped sock tied around my head , like a Rambo inspired House Elf, trying to give my throbbing temples some pressure induced pain relief and have managed to stick , not one , but two ping pong ball headed ghosts to the palms of my hands with hot glue in my Bleary-eyed state.
It should make me feel sad that just a few short years ago I have comedy photos of me at a Halloween music festival, dressed as Julie Newmars Catwoman ( she was the best, FACT!!) , being unceremoniously " arrested", hands mock cuffed behind my back by a far too willing real life policeman.
What stops me feeling sad about the changes that have come about ?
The posts and partners in PMR crime I have on this site.
Not the Hammer Horror like events that we are all being put through by our various medically trained torturers of course, but the light-hearted banter that eventually begins between us all as we try to find out blurry eyed way through the minefield of our illness and it's effects and cheer each other up on the way.
I could , of course, be a pitiful sight , sitting at the table , sock on head , manically trying to shake a gluey ghost off my fingers on one hand while typing this with the other, but funny chats like I have had this morning , are the best thing I have found to lift me from the PMR gloom.
Via Mamici 1s post , Catch 22, I have been able to cheer myself with Sheffield Jane's amusement at me walking down the street , looking like a drunken vagrant and supervised by my daughter .
Turned that into the possibility of creating a PMR/GCA flash mob of wobbling zombies , dancing to the spooky tinnitus version of Michael Jackson's, ' Thriller' , playing in my head ( obviously a silver lining of the condition!!).
Mamici, Rimmy and I have even decided to throw the crumpled party hats from the pity party aside and organise a PMR/GCA Halloween party instead , complete with countrerband portions of gooey cake and party games involving dunking our worst doctors in the apple bobbing barrel until their toes wiggle , and full body tar and feathering them in syrup and rice crispies until they surrender and give us the pain relief we require.
( Perhaps Doctor Torturing should become a form of behavioural therapy to get over the Pred induced blues and made available on the NHS?)
If anybody else would like an invite you are most welcome, please apply below. I think the first annual electronic Halloween Party of PMR induced psychosis will be this years big event!
Yes, I know it sounds like I am suffering from some sort of Halloween inspired , pain induced lunacy , but in reality , it's this sort of light hearted banter , with people who understand what we are all going through , and are willing to send out an electronic hug and a few funny words despite their own troubles that keeps me going through the day.
So I just wanted to say to all those members on the site that give me great advice , the cheery support and the odd bit of cheeky banter THANK YOU SO MUCH, I really don't think I would be here and my version of sane without you.
Bye for now, see you all with your zombie rags on and above all,
We ain't afraid of no white coats!!
Pain Free Halloween All
To all GCA and PMR patients: 
Worried about PMR & GCA
PMR - increased risk of GCA
GCA/PMR One Year on (?)
Not GCA or PMR after all. 
