Just come back from Sicily early due to screaming pain in my legs so bad I could hardly walk. One day I was fine, went out on a boat and managed to snorkel so was very proud of myself. Then in the afternoon it was down hill all the way. I have had a particularly stressful time recently that can’t have helped.
Better now I am back but the pain persists and is better with Paracetamol, now I have read that I shouldn’t need additional analgesics.
I had 4 and a half years with GCA smugly wondering what the pain others mentioned was all about and now I know. Had the blood done on Friday and was going to speak to the Rheumatologist but he was off sick, the rest to determine whether I could have the Azathioprine was fine so I can start that if he recovers. I have been stuck on 15 mgms for most of this year, struggling with my blood pressure, put on 2 stone and have swollen ankles. I have been reassured by a very kind person on this site that it’s ok to try and importantly it can just be stopped if not. In the meantime my usual optimism has taken a battering and I sobbed over my porridge, that’s a waste of time as it only makes the puffy eyes already resplendent in the Michelin Woman face look even worse. I think it’s one day at a time.
I must tell myself it has to get better.