Second Rheumatologist Appointment: Second... - PMRGCAuk


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Second Rheumatologist Appointment

Theziggy profile image

Second appointment with rheumatologist today. A very nice man - even more so when we discovered a mutual hobby - running. I find it helps to bond in a human way with a doctor/consultant, makes them see you as more than just another patient!

So, he is happy with my progress, Down all this last month from 15 to 12.5 - some minor flare-ups, but by no means debilitating. Did a load of walking and even went to Parkrun last week where I walked/ran about 50-50. Was going to quit about half way round but persevered. Felt a bit stiff the next day though.

Tomorrow I drop from 12.5 to 10, Dr Anderson told me not to overthink it. He said I could do one day at 10 mg and the next at 12.5 mg for a few days to make it even more gradual.

So this is where I am now. I did say to him that I had been a tad down/depressed and had not been sleeping that well, he said that was probably the steroids and as my dosage lowered so would the side effects .

Thanks to everyone on this forum who have been so helpful to me.

Laters 8-)

5 Replies
DorsetLady profile image
DorsetLadyPMRGCAuk volunteer

Some do find the drop from 12.5mg to 10mg a bit more difficult than 15 to 12.5. Although it’s the same dosage wise, it’s bigger (albeit slightly) in percentage terms - which is why it can be more troublesome. So just be aware of that. You might find it easier to stagger the first 2 weeks rather than just the first, or try this -

Plus you need to remember you still have the underlying illness, the Pred is only controlling the inflammation caused by it, so just go easy on the exercise. Not too much.

Theziggy profile image
Theziggy in reply to DorsetLady

Thank you DorsetLady wise advice

Though I am due to drop to 9 mg next month so your link is not really applicable to me

DorsetLady profile image
DorsetLadyPMRGCAuk volunteer in reply to Theziggy

Why not? It can be used at any level of Pred if you are finding tapers troublesome.

PMRpro profile image
PMRproAmbassador in reply to Theziggy

Really? Don't be so sure. It is from 9mg that tapers become harder for most people. In fact, the original Dead Slow and Nearly Stop taper was developed by someone to get to lower doses from 5mg. He had failed several times until he spread the dose as DL's taper also does.

I've slept better since I started taking one of my calcium doses near bedtime (with a small snack otherwise it seems hard on the stomach). Lifelong intermittent insomniac and except for a couple of nights lately when my head was spinning with home purchase issues I've slept pretty well for nearly three years now.

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