Well, Ok. Hands Up. Today, the DF (Deathly Fatigue) well-and-truly got me. After a good start this morning, by mid p.m. I was dragging myself around with my tail between my legs like the beleaguered CEO of a famous, equally beleaguered British financial institution (clue: 'Truly Shambolic Bank') after a roasting by MPs in the UK Parliament around IT systems and (a woeful absence of?) Crisis Management.
But then I reflected on the past weeks of all the strenuous stuff any of You Lot here who are daft enough to follow my ramblings might know: moving home, family celebrations, travelling, brawling with Tedski (always Fun), giving talks to PMRGCA local groups (even more Fun), dancing between The Pred Club and Pred Club Zero +/-, and getting up to my usual antics around the place.
Conclusion? Before you shout 'SILLY MB, YOU SHOULD KNOW BETTER!!! from the rooftops: no surprise really. A question of Pacing (or lack of), and all that?
But 'Here's the Thing', as some of our US Lot might say: on the Positive Side, the first episode of the dreaded DF for as long as I can remember (for much of my PMR Journey it used to happen frequently, and wiped-out for days on end). But, today, only for a few hours (and a quick kip) before the Energy Batteries re-charged themselves - Result!
Lesson? Look at the Big Picture over Time with the typical PMR Symptoms (Pain, Stiffness, Fatigue). Ask yourself: overall, are things getting Better - even if in fits and starts, and with setbacks? If 'Yes', then you / we are slowly making progress with this chronic illness. If 'No', hang-on in there and try to roll-with it - with the help and support of this community and / or your Doctor / Specialist. There often is Light at the End of the seemingly endless PMR / GCA Tunnel, even if it's a dim light or sometimes seems like a Mirage.
Learning? Positive 'Load' (i.e. doing things which we look forward to and enjoy), even if struggling with PMR / GCA, and even if pushing ourselves a little more than we should, aren't necessarily bad for us, within reason. It's just a question of being realistic about what I call the 'Catch-up' period afterwards, when we have to rest-up and be patient in the process (as I did today).
In my books, what I call 'Positive Stress' (i.e. exciting / pleasurable things) can't be bad for us Psychologically - and I'm convinced that must feed back into the Physiological equation, somehow. I don't know how or can't prove it, but that's my Theory and I'm sticking with it for better or worse.
The Aunties might have some ideas about this? I await their responses nervously behind the sofa with that beady-eyed rascal, Tedski, at my side - who is now tagged by G4S and under a curfew after receiving a Court ASBO (for our overseas Friends - Anti Social Behaviour Order) for chasing the famous WSM seaside donkeys and terrorising a school party of 5-year-old infants on their first ever seaside outing. Oh well, at least he keeps the Limo in good shape and cooks a fine Beef Stroganoff with Solyanka Soup. So, 'Job's a Good-un'! - unless he gets into more trouble with the Old Bill
Wishing all of You Lot a peaceful weekend, wherever you are. And try to remember: try to Keep Positive Hope and Faith on a gruelling PMR GCA Journey that, for many of Us Lot, Will (probably) Get Better eventually. And.. having a Smile or two along the way must be a good thing, therapeutically at least?
And, Finally: DON'T MESS AROUND WITH / FORGET TO TAKE YOUR PREDS!!! (unlike someone here who shall be nameless...)
P.s; For Newbies: PMR Survivor, Dx early 2015 aged 57, started 30mgpd Pred, Helter Skelter tapering Journey, many ups and downs, but 'getting there' now at 2mgpd Pred +/- and coming out of the long PMR Tunnel. Phew..!
P.p.s: the photo is from when I appeared at a Trainers' Conference in Kiev, Ukraine a few years ago. Great Fun - and links to 'Tedski'...