Last week, you were all treated to my mini meltdown about what I think was a “flair”. I had tapered down to 26mg from 30, and I guess it was either to quick a drop, or who knows what— but it wasn’t fun. I can’t even remember the details— I think I’m suppressing them as bad memories. I’ll have to re-read my own post to remember.
ANYWAY: I went back up to 30mg right away, so unpleasant were the symptoms. This happened:
NEXT DAY: wonderful! No pain, no wobble, strength back in my arms. I thought: ok- got this tamed— I will just taper much more slowly... meanwhile, I decided to stay at 30 for a few days, just to settle and clear things up.
DAY 2- WHAT?!
Some symptoms return— arms weak, legs wobbly to be fair, I think I had some sort of cold or respiratory bug— or maybe even Allergies.
DAY 3——> Today
Become very dizzy and light-headed when sitting or standing up. This is the biggest thing holding me back. Blood pressure seems OK, that is, i have high BP, but medications keep it in check. I was wondering if it went TOO low, but is just normal.
ANY PHYSICAL EXERTION leaves me gasping for breath, as if I’ve just done a marathon. I’ve had this many times, but I’m concerned that it’s happening even with a good dose of Prednisolone.
SO, I FEEL GREAT— as long as I stay flat in bed. Not optimal. 🤷🏻♂️
Ohhhhhh nooooo! I hate to hear this billinSurbiton!!! I'm so sorry you are experiencing this.. That out of breath feeling is almost as bad as the "Frankenstein Legs!" I'l let the "experts" respond to the question about dosage, but in the meantime rest, rest, rest...
I know it's boring as hell, but many a day I have spent laying on the couch, staring at the wall!!! ... I did feel better for it, the following day!
Sending healing, happy, healthy thoughts!
Hi there
so you think the breathlessness is caused by Presnor the condition? Just curious as I get that out of breath thing too - walking and talking at the same time isnt an option these days - something I used to excel at! 😄xx
I’m reading online about the connection between this, and/or spinal cord compression, and breathlessness. Look for some information about Spinal Stenosis ... PMR sufferers talk about the breathless symptom. For me, I definitely feel it from the base of my spine, then down my thighs on the outside, then I can’t breath