Started writing a big long post and decided to wipe it lol life’s too short and Sun is shining ☀️☀️☀️
Don’t you just feel bugged when well meaning people say ‘ah sure we all have those aches and pains, my knees are killing me’ Now I’m sorry about your knees but ‘aches and pains’ !! Just hate it when people think that’s what I have.
Or another friend who I love to bits says how’s your polyneuralgia doing 😂
It is very difficult to explain PMR to those who have never had it,this forum has been such a great help for me ,dealing with all the symptoms of PMR and GCA,it is so hard to tell friends and family how l feel ,they probably think l am just feeling sorry for myself and that a lot of people have aches and pains.l have found it is best to say nothing to them because they cannot possibly understand. This forum should be looked at by our GP’s as even they find it hard to diagnose the symptoms,or how tapering the steroids is often difficult as it can flare up again sometimes and it is best for us to control that. I also find that a lot of people have never heard of polymyalgia or GCA.
Have you seen this?
healthunlocked.com/pmrgcauk...
It expresses what PMR does to us so well - and doctors were quite taken aback.
Very good thanks 🙏
I don't bother mentioning pmr to friends now,had it 2 1/2 years.Most people have forgotten I've got it,including family or they ask me how my back is😲.I feel a bit lonely with it especially on a rough day😕
“But you don’t look ill” is also a reply I often get, find it best to change the subject, life’s too short as you say. Enjoy your sunshine, low grey cloud here but have some new plants to put in the garden so will get out my little stool with wheels and shuffle around putting them in, gets me out of the house 😂
Someone said they replied to that with "It isn't my face that's ill!"
I usually just look a bit shifty and tell them it’s the drugs then change the subject.
😂😂😂 although I have had faceache🤔
Oh enjoy that 🌸 I’m trying to tidy up my flower beds here too this week 🤞
Just smile sweetly and look sympathetic (if you have the strength). .....no point in getting stressed!
We know!
I must have deleted or not posted about 30 messages when I have reread them and thought...bloody hell stop whining woman.
I do have friends/ acquaintance who do the aches and pains bit but am lucky that my family and closest friends seem, at least to my face, understand its impact. I do send my younger sister things like Dorset Lady's overview and some bits about DOMS and pred side effects. She tends to spread the word for me which makes my life easier when I am with them. I have the condition and have had a steep learning curve so, as it might hang around for years, I thought I had better prepare them.
When I arrived at my weekly social, today, 1 of my friends said' don't ask P. about his shoulder op. You'll get an a to z answer', so I didn't ask him. Surprised he carried a heavy tea-tray without a whinge.
Having asked about the rather bad pain I was experiencing, my Rheumy said we all get aches and pains and I`m twenty years younger than you!!!
aches and pains on 3mg pred
CBD OIL for aches and pains 
Terrible Pain and Aches
How many of us have both Polymyalgia and fibromyalgia?
Aches and Pains and tapering 
