Ups and Downs of Life: The great news is: I have... - PMRGCAuk

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Ups and Downs of Life

croescade
croescade

The great news is: I have been off Pred for a week - without pain and even the arthritis is lying low. All in all I haven't been feeling so well in quite a while. Then last Tuesday I found a boob lump. Saw very good woman doctor on Thursday who has referred me urgently to the Breast clinic and found a heart condition that she feels needs to be investigated urgently. Next week is full of tests x rays etc while I feel more energetic and well than I ever hoped. I have lost about a stone in weight since Christmas which I am sure has helped the arthritis and my word do I look good in my Increasingly loose clothes. I am not going to worry until they tell me that I have something to worry about and am spending the break with my dear sister without whom I should be lost. The last thing I want to do is worry my boys and spread alarm and despondency.

44 Replies
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Oh croescade! Your attitude is so grounded and sensible. I am so glad that you have a special sister in your life who sounds like your rock.

It is so unfair that you come out of one health storm and straight into another. It is commendable that you are taking time to notice all the good things about your recovery and getting off Pred.

I wish you all the very best with these investigations and subsequent results. I send you a virtual hug and all the blessings for an easy ride. You’ll be getting the real hugs and support very soon from your sister. Have a lovely Easter, allow yourself some chocolate. Well done!

Good luck with all that and well done with the approach but I’m glad you’ve got your sister and the distraction I hope she brings. If the breast unit is like my local one (UK) , you get answers on the same day as to whether it is anything to worry about so you know where you are which is half the battle.

croescade
croescade
in reply to SnazzyD

Thank you so much for your best wishes. I believe my local unit is very good and I shouldn't have to wait too long. All the best to you for Easter and beyond.

You and me both. So many new problems recently to add to the PMR and GCA. We, maybe fortunately, refuse to worry until told we have something to worry about. Congratulations on the weight loss. 👏 Hope you have an easy time with your investigations and a speedy recovery. Always having something to look forward to helps me stay more or less sane! Have a lovely time with your sister. 😊

Thoughts and prayers headed your way.

croescade
croescade
in reply to TooSore

You prayers are very welcome. I have had experience of their value in the past. Faith etc is not very fashionable today but I have never lost mine, though a somewhat lapsed Catholic. Anyway I go to Mass infrequently but shall be there tomorrow. Thanks again

In my prayers

My deepest gratitude

Stella3
Stella3
in reply to croescade

I do hope things go well for you. I think we are all very nervous of finally getting of Prednisone, but it doesn’t seem fair that now you are worried about something else. I am a lapsed Catholic too, but I still feel spiritual....I send healing thoughts your way.

croescade
croescade
in reply to Stella3

Thanks Stella. I was concerned about coming off the dreaded 'p' but in the event it has passed without problems. The extraordinary thing is that I feel so well. In fact all spine and muscular problems are eased. I cannot believe that I have something seriously wrong with me but I shall wait and see. I have found comfort in the Mass this weekend. but I have issues to resolve. My older son is a steadfast practising Catholic who derives much strength from it. I haven't lost my faith - only doubts about the Church which is not so simple. Hey ho

PMRpro
PMRproModerator

That isn't fair is it!

Nosey as ever - what sort of heart condition? I have atrial fibrillation - almost certainly linked to the PMR.

Have a lovely weekend with your sister - and you are quite right, no point worrying until there is a good reason.

Thank you PMRpro. She has detected a heart murmur which she thinks needs to be investigated. I have an enlarged heart - I have known this for some years but I haven't detected any alarming palpitations or anything so I was very surprised. I wonder if the pred has had an effect - we shall see. Anyway, I am really enjoying the Easter break. I hope yours is good too.

PMRpro
PMRproModerator
in reply to croescade

Toasting in Malta...

Hope the murmur is like my husband's: identified in a medical for BP at 18. Cardiologist said "You COULD drop dead tomorrow but I think it is far more likely you will never notice it!" Which has been the case.

croescade
croescade
in reply to PMRpro

Thank you PMpro. WHat can I say - my husband dropped dead out of the blue. All in all his was an easy death - his expression showed no pain or alarm. The rest of us suffered though. At the moment my ticker seems quiet and without any alarming manifestations.

PMRpro
PMRproModerator
in reply to croescade

Oh I'm so sorry - what an unfortunate tale of mine. My father and mother both went very suddenly. To me I found it far easier in the long term than the thought they might have suffered - but I know others found it hard.

croescade
croescade
in reply to PMRpro

Please don't worry. I know my husband's death was sudden but honestly. I wouldn't change it for my poor brother-in-law's who dies not long afterwards - it was long drawn out and painful. Thanks for your comfort anyway.

DorsetLady
DorsetLadyPMRGCAuk volunteer

Hi,

Sorry to hear that, but as you say no point worrying until or unless you have something to worry about! Love your attitude!

Have a great Easter. 🐥🐇💐

Thanks Dorset Lady. Thanks again for all the good sensible advice I have garnered from you in the past. Happy Easter

Hidden
Hidden

Hope you are enjoying your Easter Break 🐣 with your sister & so pleased you’ve got off the Pred ⭐️

It’s good you can put everything to one side until after Easter, sending you good wishes for the best outcome from both issues.

Do let us know how you get on.

Best Wishes

Mrs N 💕

croescade
croescade
in reply to Hidden

Thank you so much. I am enjoying things. There seems to be a firm wall between me and next week's shenanigans. Have a Good Easter

Good luck, and keep us posted....

croescade
croescade
in reply to Longtimer

Thank you - shall do.

sending hugs and praying for a positive outcome to match your amazing attitude. Happy Easter. Love my sisters and would be list without them xxxx

Many, many thanks Pongo. Happy Easter to you too. I have a little hanging on my bedroom wall which says: Because I have a sister, I'll always have a friend.

I'm sure you know the grand majority of these turn out to be nothing much. I had one a few years ago that turned out to be a boil getting ready to blossom.

Will be thinking of you...keep us posted.

Shall do. I'm amazed at the response I have had. It shows what a great site this is.

So good that you have your sister and will be spending time with her. Thoughts and prayers for you Croescade as you face tests etc next week. Do let us know how you get on.

Well done with the attitude and wishing you well today. ❤️

croescade
croescade
in reply to bunnymom

Bless you. Thanks

Happy Easter and best of luck, Croescade. My friend and I both had breast lumps, last year, which both turned out to be nothing to worry about. I think this is often the case, and am keeping my fingers crossed for you, too.

PMRpro
PMRproModerator
in reply to BonnyQuine

More than 80% of breast lumps turn out to be benign - which is pretty favourable odds...

croescade
croescade
in reply to PMRpro

I am fairly optimistic. Thing is it is unknown in the family and the last thing I expected when I feel so well.

Hidden
Hidden
in reply to croescade

Keep optimistic, don’t cross any bridges until you get to them. Thinking of you & let us know when you’ve had you’re appointment.

It’s pretty much a One Stop Appointment where they can often give you an answer on the day.

Hope you’ve had a good Easter Day 🐣

Best Wishes

Angela x

croescade
croescade
in reply to Hidden

Have had a lovely Easter. I hope I can look back on this with:'remember that scare I had last Easter'. I have been surrounded by love and reassurance- not least from here. Thank you Angela

Many thanks _ these stories really cheer me up. x

Hidden
Hidden

Hi, I just saw your post... I hope things turn out well and "it" is NOTHING! I have had several scares of this type... mammogram shows something, I get sent for an ultra-sound, the a biopsy. Thank goodness it has always been something non-evasive. I will keep you in my thoughts and prayers.

croescade
croescade
in reply to Hidden

Thank you so much. This sort of experience you share is very heartening

Celtic
CelticPMRGCAuk volunteer

Thinking of you, croescade, and waving a virtual magic wand your way.

croescade
croescade
in reply to Celtic

As one Celt to another - Magic is wonderful. Many thanks

Prayers for you !

croescade
croescade
in reply to Leilagirl

The more the better. Thank you Leila.X

My thoughts and prayers are with you croescade,l am sure your faith is giving you comfort at this difficult time.l hope that everything will be alright for you,please let us know how you get on xx

croescade
croescade
in reply to Grants148

I really appreciate your message Grants. I am being given unlimited comfort and strength. I shall certainly keep you all informed in gratitude for all the words of comfort I have received. God Bless

God Bless you too croescade .

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