I’m going to whisper this to you IdasMum because I don’t want my PMR to hear it I’m on day 9 of 9mg. Last week I was feeling decidedly ropey, but yesterday and today have been good. I played indoor bowls this afternoon and I felt as if I might actually be in control of my muscles. Plus the awful fatigue of last week is waning. Now to control myself so I don’t do anything daft!
I hope so, one day. I am holding at 9mg for now. Have a trip to UK coming up in May and I am determined to be WELL. Will continue tapering once we're back home
The magic nine. There continues to be snippets of hope bouncing around the group. Even those not there yet can take comfort from the success of others and look forward to a time when we will reach that point. Keep up the good work and best wishes to you and Soraya too. Don’t overdo it tho. Try to stop before you realise you have done too much. Hard to do I know. A crystal ball would be handy xx💐
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