What started as a promising morning yesterday has me now on the sofa with hot water bottle on my legs and pain in shoulders , hands and even tops of feet (didn’t even know I could have pain there!!). I felt almost normal yesterday, decided to make the most of it and after a visit to a friend in the morning got cancelled decided to go shopping for the first time in ages even carrying shopping bags! Got home made a beef casserole and entertained my twin grandchildren for a few hours and ended the day by ( I know foolish to think I should even consider this) moving around some furniture in the lounge. Boy am I now paying for it!! Tapered down from 25 to 20 mg on Wednesday so I guess I should be taking it easy but I was feeling so good yesterday I just wanted to make the most of that “normal” feeling I hadn’t had for such a long time.
I’ve learnt my lesson if nothing else and it’s a day on the sofa for me tomorrow 😴 after offering to have one of the twins for the day today (will I ever learn!!).
Please take it easy anyone else who thinks they can go out and over do it (or do normal things!) just be kind to yourself and just enjoy the feeling of normality slowly 😔
Written by
Jennyhampshire
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No, you probably will only occassionally learn😊I am 4 years I to PMR and, because of Actemra, allowing me to reduce the prednisone from 8 to 3-2m, I am feeling great. But even now I will have a day as you describe and know that I have done too much! You will get better at paying attention to your activity level but we are human and want to do everything! Eventually there will be bigger spaces between your “foolish” days!
Thanks and I shall definitely not be doing so much again in one day again it’s just not worth it to feel like this 😔. Adding insult to injury I have just polished off a load of dark chocolate which I would normally only have one piece of each day🤭. Anyway, new day tomorrow so have learnt my lesson for now.
I reckon the chocolate craving was your body’s desperate bid to get more energy. It happens to me too. Lovely giving into it for those few minutes of bliss followed then by awful regret. 🤭
Yes isn't it tempting to go mad when you feel quite good. Pity it comes back to bite you on the #*@ sometimes. I watch my 3 year old grand daughter half the week and have learned (or been taught by my body) that when she is not here, I chill. She has started nursery and I spend that time doing as little as possible. Filling my spoon drawer 😋
All been there at sometime or other... the art is to learn from it and not do it again🤔.. if only!
A few days rest and you should be okay although 25mg to 20mg is quite a big taper, so just make sure you are really okay! and it’s overdoing only not steroid withdrawal or a flare!
Feeling ok today (well as ok as one with PMR can) just a bit tired with those little niggly pains. Still gonna rest up though with my friend the sofa!!
Thanks for the reminder. I sometimes feel fraudulent because I have trimmed my life around so much in the 2 years that I have had this that I am barely aware that I am ill. Like you, I occasionally get a painful reminder when I bump into the bars of the cage - ouch!
Am not feeling too bad today surprisingly enough?? Out of interest can overdoing it bring on a flare up? Not that I am planning such a busy day again just yet.
Sometimes I overdo consciously knowing I’ll pay the next day. Yesterday I got up at 2, saw my 3 year old grandson and his little sister at 7:30 am (45 min drive), walked 3 miles, went to the movies (Three Billboards Outside of Ebbing Missouri), dinner and bed at 7! Today will be restful.
My wife is going through the same thing this AM. She decided to rearrange a closet, which meant a lot of physical activity that she hasn't done for months. I say she has "Ants in the Pants" problem. Tough to get her to take it easy. And to top it all off - She has a Radio Frequency on her back tomorrow and will start Actemra on Thursday. She has GCA for over three years and now at 22.5 mg of Prednisone. Will taper quicker after Actemra.
Oh I hope she does it all slowly but easier said than done when you just want to get on with things. My hubby away this weekend hence my overdoing it and not having any one around to tell me to slow down (I probably would have still done it anyway 🤭). Hopefully she’ll put her feet up this afternoon and rest and will feel ok tomorrow.
It is very frustrating not to be able to do the things that before PMR were just part of normal life. I find it very difficult to kneel down to do anything as my legs are so stiff,and if l do manage to just one minute on my knees makes them ache for days after. The worse thing is trying to get things out of my lower kitchen cupboards. It is not good to sit around too much but it is the only way to ease the aches and pains .l suppose we just have to always remember to pace ourselves even when we are feeling quite energetic .
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