Called the Rheumatologist's office today (who I'm seeing privately) to advise I have not been well since reducing from 50mg to 45 mg of Prednisolone a week ago. Here is a run down of the conversation I had with her Secretary:
Me: Hi, I called earlier (which was about 7 hours earlier) and left a message explaining my concerns...
Her: I have not listened to my messages.
Me: Oh ok... well, over the past few weeks, I've been reducing my Prednisolone. The last reduction from 50 mg to 45 mg as brought about some distressing symptoms; a dull constant headache, tenderness in my right temple, pain and tightness across my neck, shoulders and back, and across my collar bone area, and extreme fatigue. I'm concerned about reducing further from 45 mg to 40 mg, which is supposed to happen on Wednesday, January 3rd.
Her: I'm not medical and I cant help you... and the doctor is out of the office until next week.
Me: Oh, ok... well is there another doctor covering for her?
Me: Okay... What are her patients supposed to do if we are experiencing issues?
Her: If it is a medical emergency present to A&E. Or go see your GP.
Me: I'm not sure my GP can help as she is not aware (nor had she discussed with the specialist) the proposed taper down schedule.
Her: There is nothing I can do. If you want, I can give you my email address and will forward your email to her, but it's quite possible that she may never read or respond to it because as I said she is out on HOLIDAY.
Me: Ok.. can I have email address.
Her: Have you called your GP?
Me: No, as I explained... blah, blah, blah. May I have that email address?
Her: Have you tried to make an appointment with your GP?
Me: No. Look... I'm sorry to have bothered you. It's obviously that you are not interested in helping me and do not want to give me that email address... I'm very sorry for wasting your time.
Me: Putting down the phone ***click***
I spent the next 30-40 minutes hysterically crying and feeling ridiculously sorry for myself... until I remembered the power of the written word! I then spent the next hour writing a letter to the Rheumy!
Today I increased my dosage back to 50 mg, which is the last dose with which I felt good, healthy, and "normal." We shall see what tomorrow brings!