Hi everyone, sorry I haven't been on here in awhile. Everything was going pretty good with the GCA then on the 15th it popped its ugly head up. I was reduced to 17.5 mg and I guess my body didnt like that so had a flare up. I know it wasn't from the reduction, I waited 7 days and as the days went by my symptoms grew worse. So called my rheumatologist to see if I should go back up to 30. Couldn't get through to her but left message to call. Her assistant called me back and said yes go to 30 for 2 weeks then start reducing down again. Then today I get a call from some other assistant saying 30 mgbis too high and she wants me to come in? Since being back up to 30 my headache is gone, my tender scalp is gone, the pain in my eye is gone, my jaw isn't as sore, so I said if it is helping me how is it to high? Her reply she wants you to come in this Thursday. So my question is, how should I handle this? It seems like I am going to be given a lecture about reducing fast, and I know that it is not in my best interest. Thanks in advance.
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