Can cognitive and neurological work help with pain from PMR .

[Marek1]

Hi Everyone .

A close friend has told me about the `Cureablehealth.com ` which is a foundation that people use to tackle the brains habits and responses to chronic pain . In effect reviewing our relationship with pain and learning to get our minds behind the healing process .

I used something similar called the Lightning Process to tackle ME very very successfully about 20 years ago . It was a purely cognitive technique and it was amazing .

The curable app is something that supposedly has had great success with fibromyalgia , ME and IBS symptoms as well as other chronic pain conditions .

The reason I have niot embarked on anything like this so far , is that I feel a large amount of feeling horrible is down to the steroids and there fore surely side effects are side effects even if you have success in dealing with the PMR .

My hope is that perhaps through using something that can lessen PMR symptoms . I can then reduce the steroids significantly enough to start feeling better .

Any thoughts and experiences would be very very welcome

Thank you Marek

[DorsetLady PMRGCAuk volunteer]

Can’t help on the programme, but just to let you know the link only works from your email, and not from your post- so have attached it here for anyone who is interested

curablehealth.com

[PMRpro Ambassador in reply to DorsetLady]

Interesting - doesn't work from my email. I assume because of the quote marks? But copy and pasting it works.

[PMRpro Ambassador]

If CBT and the like work to help deal with the effects of chronic illness and pain, I imagine they might also work with the effects of the treatments? However - a lot of the feeling horrible is due to the autoimmune disorder continuing to attack the body tissues, causing inflammation which is quickly mopped up by the pred as long as you are on enough. That is much the same as having flu - does CBT work then?

[Offcut]

I went on a referred course organised with my GP and local University. I was taken and maxing out on opioids daily to help my pain relief. The course explained how the USA have been hit with an opioid disaster. Look it up on google.

The course taught us to look at distraction and mindfulness to control our pain and not look at the downward spiral of drugs to fix the problem. It was a 3-week course and a 6-week reduction of pain relief for me. I no longer take any Opioids at all and rarely take a paracetamol. I am not pain free but I manage my pain now.

I have had many people state that they have seen a real difference in me in so many ways and that Brain Haze of the past has gone and I am a lot sharper than I was before my opioid journey.

I am sorry to say there was a few on the course that did not change but they had more excuses on why they should be taking strong painkillers and did not even try. It is very much akin to people that have had to use a crutch while they healed but then rely on the crutch as they have been used to it and will not let it go. Even though they no longer need it.

Be well

[Excelsior80]

I have been reading a book, 'The Painful Truth' by Monty Lyman,  PMRpro mentioned it .... he says there are a few apps using these ideas about pain. He mentioned curable as one that looked credible and seemed to have a good effect, though it was quite new and all details not clear yet when he wrote, and it was more for chronic pain than short term pain due to illness, maybe?