PMRGCAuk
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There is hope.... a little Christmas Miracle 🌲

The chronic fatigue has lifted and I have my energy back! The old me is returning and all in time for Xmas.

So what’s happened and what’s changed? Was it the supplements? Various alternative treatments , the Preds, don’t think there is one specific answer but I handed my notice in at work 10 days ago from a very stressful teaching job and the relief is literally enormous. That may well have shifted something!

Today I went for a swim and a 20 minute gentle walk. I am taking 1mg per day until I see my GP in the New Year and then it’s a discussion about coming down again and off the Preds completely.

But the fatigue lifting is just incredible and finding the old me again is nothing short of a miracle 🙏

So there is hope one year on I feel there is definatley a light at the end of the tunnel.

Merry Xmas and Happy New Year and most importantly thank you all for your support it has been invaluable x

12 Replies
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Snap on2mg the last week has been great,as the photo I just posted sort of proves

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Hi

You have done very well to get down to 1mg in a year

Happy New Year to you

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Well done, but be very careful as you come off that last 1 mg. I was down to 1.5 mg about six months ago and a premature attempt (actually a couple of attempts) to reduce to 1 mg triggered a flare which I have still not recovered from. Still at 4 reducing to 3.5, having had to go as high as 7 for a few days to get a handle on things. Not saying this will happen to you, or even to very many people who get so low, but I honestly thought that I might be in remission when I reduced without apparent difficulty from 2 to 1.5 and my doctor suggested I use up my pills, stop and see what happened. Even without being quite as extreme and abrupt as that I found out to my chagrin what would happen! So, really, be very careful, very slow, and then you should avoid this kind of problem! All the best!

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Stopping work will have made a big difference. It did for me! Don’t go too mad now that you feel better...

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Wow! That is soo positive. It gives me great hope. Long may it continue! Treat yourself gently in 2018 they say it takes 12 months to properly recover. Lucky, lucky you!

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I so can relate to you. I had the same experience although my old self came because of Actemra. I know how horrible the fatigue can be and I had to deal with it since September. I'm very happy for you. Good luck on your journey and a very Happy New year, Monika

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Thank you x

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Happy New Year Monika

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Great news, so happy you are now off the Prednisone

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Not off completely !! Will wait until I see the doc as I hear that tapering at this very low level is really difficult and I know that I have to be very careful x

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I have also handed in my notice from a stressful job and I actually left there on the 21st Dec.I can say too that I have felt the weight lifted from my shoulders as I've been hanging on by my fingertips for months!

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Well done you BRAVO!!! Lets listen to our bodies and do what they tell us to do. xxxx

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