I wrote recently about my reservations on reducing the Pred prescribed for GCA because I was still experiencing side effects/symptoms. Following the advice from this forum, I decided not to reduce or increase my dose until I'd managed to speak to either a doctor at my surgery or the rheumatologist at the hospital. As my experience with the local doctors hasn't been very reassuring, I decided to try the rheumatologist route. So, I rang the support nurses help line yesterday morning and left a voicemail message on their phone. One of them rang me back, made a note of my concerns and said she would talk to the rheumatologist. She then rang me back again to tell me to bring forward my monthly blood test to asap. Amazingly enough, I got a cancellation for the same day, then I phoned this morning for the results. Apparently, the results were good and my CRP levels haven't increased since August - currently at 4. So, I've been adviced to carry on with the reduction - on 25mg since 1 December, reducing to 20 on 1 January. However, it was impressed on me to contact them again if I was at all concerned. At the moment, my symptoms seem to be settling down so I'll keep my fingers crossed that this continues.
Thank you all once again for your advice - and I'm sure it won't be the last time I need it!!