going good so far: my taper down from 20 to 17.5 is... - PMRGCAuk

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going good so far

daworm profile image
10 Replies

my taper down from 20 to 17.5 is going pretty good so far, it should I guess, more problems seem to happen to people around 10mg I've seen from reading on the forum...anyway...I over exerted the other day, snow shoveling!!! expecting a rough morning and day after...nope..all was good...lucked out this time...here's my question..my main morning problem with stiffness and soreness are my hands..I don't read a lot from people that have hand problems with PMR...very stiff and "crab claws" early in the morning for an hour or so...not unusual?? I thought it mainly stayed up in the arms and shoulders...

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daworm profile image
daworm
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10 Replies
SheffieldJane profile image
SheffieldJane

Prior to diagnosis with PMR my hand would get stuck in a painful claw position for a few moments then sort of crackle free. Gone since Pred. I had forgotten about that symptom until your post. I do get painful fingers doing things like applying body lotion with a flat hand, only during that motion though.

jinasc profile image
jinasc

Any sign of arthritis at all, like knobbly joints in fingers?

Golden rule, no more than 10% at a time so do the math.

If you wake up early in the morning, take your pred does, cuppa and a slice of bread, snuggle back down and then have a warm shower, or fill a sink with fairly hot water (not boiling and stick your hands in and see if that relaxes them a bit.

daworm profile image
daworm in reply to jinasc

my hands, (like right now) get much better as the day goes on...I don have OA in some joints but nothing that swells up or knots...

jinasc profile image
jinasc in reply to daworm

I found Flexiseq helped..............the OA. Visit the ARC website and read up on it, it is a bio-mechanical cream, works like WD 40.

daworm profile image
daworm in reply to jinasc

ill check it out...I got the fish oil and turmeric going, that helps I'm pretty sure..

piglette profile image
piglette in reply to daworm

My physio recommends Flexiseq. It can vary in price so check around.

DorsetLady profile image
DorsetLadyPMRGCAuk volunteer in reply to daworm

Try a well known internet supplier..beginning with A..

DorsetLady profile image
DorsetLadyPMRGCAuk volunteer

Hi,

Did you read this post about claw hands

healthunlocked.com/pmrgcauk...

PMRpro profile image
PMRproAmbassador

Depends on the person but hands and feet can be involved in PMR - I had tendonitis and synovitis and it reappears if I am having a flare. Some doctors will claim hands and feet are nothing to do with PMR but Leeds did a study - and yes they are.

daworm profile image
daworm in reply to PMRpro

some doctors have a very limited knowledge of PMR, that I'm finding out by reading and even talking with my Dr...but at least he listens and if I bring him an article on it he actually reads it and gets back to me on his thoughts, via the patient portal...

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