I was diagnosed with PMR nearly a year ago, and was put on 30mg of Pred. I was able to reduce to 17.5 quite easily, but since reducing to 15mg (end of September) I have had pain to a greater or lesser extent. My doctor was very keen to get me down as quickly as possible - I didn't always go as fast as he wanted but have managed to get down to 8mg.
However, I have had constant pain, sometimes worse than others, but its fair to say I have not been pain free since September. On good days, it is just an irritation, but on bad days it is really intrusive. I think I have a high pain threshold and only take pain killers as a last resort.
When I saw the doctor yesterday he asked how I felt about going back to 15mg. Stupidly I didn't ask why he suddenly thought that was a good idea, (other than to reduce the pain!) or what happened next. We both think there is something else going on as well, so I suppose he felt that if I was pain free at 15mg it WAS PMR and I was still in pain it wasn't.
However, I am not sure what to do, as yesterday was a good day and today is OK! I really don't want to increase the dose as my head just didn't belong to me at the higher dose, and as I am still working (albeit from home) I need my head! Also, my hair is awful, and I am bruising easily. But, it would be nice to be pain free for a while!
So, I don't know what to do!
Any comments would be appreciated!