I have been reading post every day but haven't posted in a while..
Well a while back I felt so good and figured maybe I was in remission from PMR only to find out my GCA is still here. So, I went to fast from 20 down to 10 crashed n burned and now back at 20 which seems to be the number to stop the jaw and head ache.
My doctor is very concerned and is now going to talk to a rheumatologist for advice. This worries me as they are more inclined to a strict get off prednisone regime.
My side effect of Cushings is back n my face is rounding out a tad. At least I am not wrinkled.... small blessing......
so I have been on 20 for a few weeks n now will alternate to 18mgs.
I am still feeling more better and have more energy and PMR pain seems to have subsided. I wonder if it can be done and I am left with GCA.
Hope you are all keeping well.