Sjogren's syndrome

[Jayanti2604]

Hello,

l'm 32 yrs old woman. I have dignosed sjogrin syndrome in march. I have also nerves problem. Doctor Prescribed me prednisolone 5mg, hcqs200, pregablin and methylcobalamin.

[PMRpro Ambassador]

I'm not sure this is where you want to be - this is the PMR/GCA forum and very few of us have Sjogren's. There are several on the lupus forum who might be able to talk about it with you and tell you places to find support:

healthunlocked.com/lupusuk

[venezia1]

Hello,

I have sjogren's along with RA and GCA. I have not been prescibed anything particularly for sjogren's as I was aready on prednisolone and other meds at the time. Gabapentin was added last year. What is your question?

[klairv0yant]

I, too, was diagnosed with Sjorgens. I think it is more common once one autoimmune another has a ready path way. I'm wondering what it is you need? Glad you reached out for a start somewhere

[Jayanti2604]

Thank u guys for ur response. Actually I want to know that can I take all these pills per day. Is it not too much. I think there could be so many side effects of these tabs. And one more important thing that I haven't more dry eyes and mouth which are main symptoms of sjogren's. I'm having joint pain and fatigue but sjogren's positive in my lip biopsy.

[PMRpro Ambassador in reply to Jayanti2604]

There's no-one here who can really answer that sort of question - and very few of us are on any of those medications apart from pred. Which was why I suggested you tried the lupus forum where there are people on multiple medications for Sjogrens.

However, I can say that I know people taking prednisolone and plaquenil, that is quite common. I'm pretty sure some of them take pregabalin too. It is much the same as gabapentin and some people do better with one, some with the other. Methylcobalamin is just a vitamin B12 supplement.

Side effects possibly but until you take them you won't know if YOU have any - and many people don't. Then you have to decide which is worse - the effect on the disease plus any side effects or the unmanaged disease. And will have to discuss it with your doctor since you obviously decided it was all bad enough to see a doctor about it and the doctor decided this was the way he wished to manage your symptoms.

[Jayanti2604]

Thank You ma'am

[Annodomini]

I have discovered the Austraiian Sjogrens Syndrome Association forum which quite a number of UK people have joined - there doesn't seem to be a British SS forum. You can find it at

healthunlocked.com/sjogrens...

and you will be able to find more answers to your questions there.

Good Luck.

Anno

[janemaria]

I think researching about sojorns syndrome (spelling off) and possible second opinion because prednisone can be really wicked and seems like a lot of meds ...I developed cushing syndrome from it for "asthma". ...I researched from major hospitals and organizations as well as getting invaluable help and info via facebook support groups for specific issues I look for groups marked private so u can converse without" world" viewing I would suggest placing in search line on facebook" Sojorns support" group which may be of help...but I don't know what type of dr ordered theses meds I would research from those who have been there and done that to prevent unnecessary problems from medication.and how to confirm diagnosis by which specialist and.usual treatment options and (side) effects of drugs... Remember You have to be your best advocate u have a PHD in you no one else knows your body or will feel your pain...if it doesn't feel right listen to your gut and proceed foreward for your best interest drs work($) for you if not ok fire and move on must be an advocate type of physician for a team effort for best outcome.. Wishing u the very best sincerely