I'd like to give you a quick update and than I have a couple of questions.
First, still working from angry and frustrated to accepting this new journey. I have increased my dose of prednisone from 60 to 80 per my rhuemy' advice. My symptoms of GCA started to return, mostly the black lines in peripheral vision, as well leg, groin and shoulder pain. The "kicker" for me (pun intended) was not being able to walk up steps without my leg or legs collapsing. It seemed silly to be on the prednisone with the side effects and still partially immobile.
I had originally thought the return of the pain might be DOMS as I am trying to keep some exercise and activity in my routine. Yet, I was amazed at how better my legs were once I increased the prednisone. I could look and go up steps without that lurking fear of legs collapsing. I could pick up my 2 old grand daughter without shoulder pain. Yeah!
So now that I have a new baseline for better feeling legs, I'd like to continue to stretch and strengthen my muscles. I realize healing and resting is a top priority as the symptoms remind me the muscles have been and are still affected by the disease.
I have seen Delayed Onset Muscle Fatigue brought up as an concern and a sign that a I maybe pushing my muscles too far. When I was training, about 10 years ago, I was taught that this muscle type pain was often a good sign and not to be concerned as it was the tissue muscle breaking down and growing new and stronger tissue. For me the DOMS pain would start on day 2 after a workout and than last for 1-3 days.
So how does this all differ now that I have PMR and am taking prednisone. I assume PMR slows the blood flow through the muscles and connective tissues, correct? What than is the effect of the insufficient blood flow? Do the muscles not repair themselves or????
I believe prednisone is known to cause muscle atrophy, correct? Can someone explain the how and why?
I don't think I have gotten to the point where I can begin to guess if what i feel is DOMS verses PMR pain. I suffer from chronic fatigue so if I do too much, my body just shuts down for a nap. I literally can't keep my eyes open. This I remember from training and was told it was due to over training and not usually a good thing.
Thanks again to the experts on this forum and I look forward to your reply.