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Tapering steroids

Hello to everyone. I have lupus and rheumatoid arthritis and to add insult to injury I just got diagnosed with COPD. Haha ain't that some cookie. I got diagnosed with the lupus and RA combo when I was 13 I've been on prednisone since then and the " speacialist wants to get me off prednisone like it's chocolate syrup on my face she should know you can't do that am 38 .

4 Replies

I think the folks on the lupus sight might be more helpful. I don't know much about that issue, particularly when complicated by RA and COPD. Folks here have PMR and /or GCA. For PMR we reduce prednisone very slowly, the amount and timing depends on the symptoms you're feeling. Good luck


It's the same for lupus on reducing the prednisone very severe.


If it is just tapering pred you are interested in:

and that link is in the LupusUK forum - who are a lovely lot and probably far more use to you than us the PMRGCA forum where you landed.


I was diagnosed with PMR in Dec. 2016. During the summer of 2016 I started feeling short of breath along with the symptoms of PMR. I was diagnosed with COPD too in January of 2017 after a pulmonary function test my doctor ordered when I complained about the shortness of breath. I read a lot about others who complain of shortness of breath with PMR and also asthma-like symptoms and COPD. I quit smoking over 35 yrs. ago (after smoking for 11 yrs.) I didn't start the prednisone until late Dec. of 2016 and I had the shortness of breath a few months before my diagnosis so I really can't blame the shortness of breath on prednisone I guess.


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