I have been reading posts on here for a few months but it is the first time I have posted.
I am 62 years old , a retired teacher. I was diagnosed with PMR in May 2016. I had been feeling very stiff in my neck and shoulders for a few weeks but put it down to a long haul flight back from Oz. I then had a fall whilst out walking in the Malvern hills , badly damaged my tendons and ligaments around my ankle. One week later, I was in pain everywhere, arms, legs, shoulders and particularly my hands and wrists. At first I presumed it was the after effects of the fall. It got so bad I couldn't get out of bed or bear to let my hubby pull me up from sitting. I went to GP, he got on phone to the on call rheumatologist, I should add I have a history of autoimmune issues, ulcerative colitis and hypersensitivity pneumonitis and also tested positive for the rheumatoid factor. Upshot was the rheumatologist saw me next day, inflammation markers were high and had a steroid injection in my thigh. Within 24 hours I felt so much better. Saw him again in 6 weeks as symptons returning, he then decided to prescribe 10 mg prednisolone , felt sure it was PMR from my symptons but said he thought it may be reactive arthritis.
I have been slowly reducing 1 mg a month to 6 mg in November and have been fine. He suggested I move to 5 mg after Xmas and then 1 mg every 2 months. Last week I woke with awful finger and wrist pain and now shoulder stiffness returning. I went back to 7 mg but still experiencing stiffness first thing. I take a couple of paracetamol and by the evening I'm much better. Morning waking stiffness is still here though.
Do you think I should go to 8mg? I'm puzzled why I should have been fine at 6mg for almost 7 weeks and suddenly start to get symptons again.
Thankyou for taking the time to read this and sorry for droning on, but wanted to put it into context.
This forum is so helpful and informative.