Hi to all! I was diagnosed with PMR last October 2016, after an extremely stressful year I developed muscular pain in my legs and shoulders. I was quickly given 15mg of steroids which worked wonders. A month later I noticed that I had a swelling to the left side of my neck and face and as it was thought a lump had appeared I had scans and tests which revealed that there was no lump and the symptoms could not be put down to taking the steroids as they were only on one side. Apparently steroids are systemic and could not just affect one side of my face. So was advised this was fatty deposit that I may have to learn to live with. I find it hard to believe this is unrelated. I have continued to reduce my steroids as quickly as possible, probably too quickly maybe. I still have muscle pain in my shoulders and hips and knees. I also have joint pain in my fingers and thumbs. My GP has now referred my to a Rheumatologist as he does'nt think that the pain in the knees and fingers is related to PMR.
As an added problem I have an under active thyroid and take thyroxine.
And in the last 6 months found my hair is falling out. I have also developed a buffalo hump and weight gain due to the steroids. Feeling very frustrated at the added insult to injury I am experiencing!
I am and always have been a very keen swimmer and swim at least 2 miles a week. This does have its affects, but I am determined that PMR will not take away my beloved activity. It does worry me that I may delay the healing process by pushing myself so hard, and wonder having read on this site, that maybe I should try cutting this back to half what I have always done.
I look forward to hearing from other sufferers with their opinion and ideas on treatment.
Does anyone else out there have swelling to one side of their face and neck?
Does anyone else have hair loss? (This maybe connected to my thyroid)
Does anyone have pain in their knees?
I take 6 mg of steroids currently 3 mg day and evening. What are your thoughts, should I take all at once in the morning or split it as I am doing? I am always worse in the mornings.