I have had GCA since March and started on 60 mg Pred and have slowly reduced to 20 mg over 7 months . The rheumatologist says I must reduce only 1 mg every two weeks so at least 40 weeks to get down to zero and probably more as after 10 mg I know it gets harder. I am ill almost every day and do not seem to be making any progress. I took my dog to the river by car and sat on a bench and went to Boots to get my new prescription and was exhausted and ill for the whole day with awful weakness, head like a lead weight on my poor stiff neck with a dull headache. Feeling miserable as I had hoped to go to a craft evening. I saw the GP as I thought I might have a sinus infection as well but she would not give me antibiotics and prescribed a high dose antifhistamine and two more tablets to add to the 105 a week I already take! There seems no end to it. I dont seem to get much joy from my rheumy who I have no faith in. I am 63 and just cannot believe what a change it has brought in me.
Sorry to harp on but I am having a sorry for me day. I know all you kind people understand. Will it ever end?