ESR up, but feeling good

Well if you were to ask me how I'm feeling I would say very well. The other side of the coin is lab results just posted showing ESR back up to 40. I held at 12mg Prednisone for ESR went up to 23 from 17. We then decided to go by how I felt for a couple months and I reduced to 9. Thus just a little faster than very slow. Except for a rash on belly, but and back I thought I was doing great. One more thing bone density results now show osteoporosis. Dang but I still feel good. Waiting to hear from my doc now on her thoughts.

Best wishes to all,

Mike

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  • My ESR has been up in the 50s for a while now. My GP and rheumi just shrug their shoulders and say that is fine! I find my CRP is a much better measure.

  • Thank you. That is somewhat reassuring­čśâ

    Now I have to look up what CEO is.

  • I assume you don't mean Chief Executive Officer?

    CRP is c-reactive protein, inflammation increases its level in the blood. It is proteins on the surface of the red blood cells that increase the rate of sedimentation and so cause a raised ESR. But they don't always match - ESR can be affected by an awful lot of things, CRP by fewer so theoretically it is more reliable.

  • my doctor won't do CRP, says one test, ESR, is enough - but she goes by my symptoms anyway

  • Hi Mike,

    Having a quick look back your previous posts, would say that overall you have been reducing too quickly, trying to do too much, and therefore maybe not having full control of your inflammation along the way.

    When you say 'went up to 23 from 17' assume you mean ESR reading- and at that time you were on 12mg. You say you held at 12mg - for how long, and did you check your readings again before you reduced to 9mg?

    I know we say, symptoms are the key, but if your ESR is getting higher, then you should take notice of that as well. It could be other things, as we know, but they need to be eliminated before you continue to decrease your Pred. No idea on the rash, sorry! Other than that could be connected to raised ESR.

    My ESR was never very low, but IIt was steady. An increasing one needs to be checked.

    Because most of the time you have felt reasonably okay, compared to how lots feel with PMR, I guess you have continued to live much as before, but unfortunately you do have to make some allowances otherwise it (PMR) has a nasty habit of biting back!

    Do hope you get your ESR sorted, but maybe you need to take life a little easuer.

  • Thanks, I reduced from 12 to 9 over the course of 2 months but I had been reducing to 11 before I went back to 12. Yes I feel somewhat normal but not at all active as I was. So yes I am going to try to take it even easier.

    Thanks much!

  • My CRP & ESR shot up to the 70's when methotrexate was increased to 25mg so my rheumy decided it was having an adverse effect. It lowered to 36 & 54 when withdrawn only to escalate to 70's again when I was given Simvastatin. Stopped that and increased pred to 20mg to counteract it. Now on 17mg pred CRP is less than 10 and ESR 20 and I feel powerless. I suggested this was to do with a steroid injection in my knee a few weeks ago but was told not so. Will see what the next blood test brings.

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