Hello! This is my first post here and I am wondering whether I might have PMR GCA and am looking for advice. I am an American living in Germany at the moment, but have found no support groups here yet, so please excuse me if I "crash" yours.
I have been suffering from debilitating fatigue for the last 10 years or so and have been to see just about every doctor that you can imagine and have numbers of diagnosis and treatments, none of which have helped a whole lot. Although, to be fair, I went from being unable to work and barely able to take care of myself to being employed and moderately (barely) functional but I am not sure that any one treatment has helped or if I just got a little better on my own. I have the diagnosis of "Chronic Fatigue" which really doesn't help much. I also have muscle pain (in my shoulders and lower back, particularly after sleeping. Have trouble getting up off the floor, etc.) which I chalked up to aging, but I am "only" 48 and others in my age group do not have these problems. I have also had vision problems including halos and decreased vision over the same period. For a time, I suffered migraines - but do not now.
So why am I here? Well, I read that one indication of PMR is a high ESR and CRP blood test. I have had high results going back at least to 2007 and no doctor was able to tell me why. The results have been pretty consistent over the last 9 years or so.
What might be an indication that I don't have PMR? Well, I am male and under 50. Also, can one have a slow-developing PMR over 10 years? Can the effects of PMR change (get better) on their own? At one time, the fatigue, migraines, vision problems, etc. were much worse than they are now.
I am exhausted (no pun intended) by the idea of going to see yet another doctor and having yet another diagnosis that doesn't pan out and the medication sounds a bit scary. I don't know if I should just try it and "see what happens". So I am looking for a little encouragement (or discouragement if that is called for).
Thanks and look forward to your reponse.