Diagnosis confusion : For 20+ years I’ve had... - PMRGCAuk

PMRGCAuk

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Diagnosis confusion

Alloty profile image
5 Replies

For 20+ years I’ve had posterior vitreous detachment with floaters and I was told the shimmering and halos I occasionally get are part of the condition, but recently saw people saying it’s actually a silent migraine. I have GCA and now PMR and my neighbours wife was diagnosed with fibromyalgia several years ago so we sometimes catch up and share our woes! Her husband has told me how debilitating it is and how it affects the whole family. She has just come back from an assessment with a consultant in London who did the usual process of excluding various diseases, euchre seems to be one of the ways they diagnose fibromyalgia and finally gave her a diagnosis of silent migraine! According to him this can result in temporary loss of muscle power and the typical aches and pain in lower limbs and other parts of the body. She is now on new meds and finally showing signs of improvement. Is this another possible cause of some of our symptoms?

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Alloty profile image
Alloty
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5 Replies
Bailybiscuit profile image
Bailybiscuit

I have no idea as the more I read the more confused I am with all thos. I have those migraines, no one really diagnosed them as I had read about them. I started having them about 30 years ago . I was diagnosed with pmr but A-Typical as I stiffened up in the evening. Then several more types of arthritis. At the moment Sjogrens and Inflammatory arthritis and looking at Lupus now. I have been told I have Fibromyalgia but not really sure and I have very weak lower limbs and pains in my knees/ legs.

PMRpro profile image
PMRproAmbassador

euchre????

Fibromyalgia and polymyalgia rheumatica are very different disorders. I get silent migraines - very very rarely, I did have proper migraines years ago, but neither form gave rise to anything that would be confused with PMR symptoms.

Rugger profile image
Rugger

"euchre" is a card game! 🤣 ♥️ ♦️ ♣️ ♠️ 🤨

PMRpro profile image
PMRproAmbassador in reply toRugger

I know that!!!!!

Sandmason profile image
Sandmason

I get optical migraines, the "fortification syndrome". It lasts 20 minutes. I had a couple of actual migraine headaches back in my 30s but since then nothing. The last ten years I get the visuals once in a rare while.

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