I have done so well...diagnosed with GCA in April 2015 and have decreased from 50 mg to 5 mg in a very short time with no relapses. However, 10 days into my decrease to 5 mg (Christmas Day) I had a slight headache and my hair "hurt" neither of which caused me to take any pain medication. This went on for three days at which point I took an extra 1 mg of prednisolone and voila, 24 hours later my niggles were gone. I have also had terrible night sweats and a very stuffy nose especially at nighttime. Does this sound familiar to anyone? By way of background, my first symptoms of GCA were a headache which just wouldn't go away, a sore jaw, sore scalp, night sweats and a swollen artery on the side of my temple.
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