Just posting again for advice. Having been coming down very slowly from 12mg in August to 11mg and then down to 10.5mg just after christmas. Had very bad withdrawl symptoms going down to 10.5 mg . Last time I tried to come down to 10mg from 11 mg hit a problem thats why I just tried coming down by .5 mg. I left it for 2 weeks once having reached 10mg but was getting worse so went back up to 11 mg. Have now been on 11 mg ( where I'd been stable before) for a week but now with stinging pains in my arms, legs ( never had pains in legs before always top part of body) and in my face. Also have had very bad headaches but am prone to them. Yesterday the pains were quite bad over the top of one eye and the eyebrow area and down the side of the eye looked slightly raised and and swollen. No other symptoms but I have raised pred to 12 mg , not really sure if perhaps should raise it more. ( started on 15 mg Nov 2014) .Haven't mentioned this to doctor as honestly do not have a lot of confidence in them especially as last telephone conversation with practice to ask for blood test was horror that I was still on a dosage above 10mg and because of normal bloods it was felt that most likely I hadn't got PMR anyway! My own GP who diagnosed me was also very insistent that I get off steriods quickly so I haven't been back to see her for at least 6 months but managing symptoms etc myself and just getting repeat prescriptions and asking for blood tests when I go down a dose.
Sorry so long! Thanks Jackie