Hi everyone, I've had PMR and GCA for 4 years, got down from 60mg to 5mg. Then last week got chest infection, it knocked me for six! two days ago i got severe pain in head going up from shoulders to head but also across top of head and both temples. I've just had blood tests yesterday and seeing Rheumatologist today, but I'm very worried that GCA could be starting again and how would I cope going through all that again?! Today my right temple is a bit tender, but I've had that on and off for 4 years. Should i insist on a Pet Scan now, as a biopsy at this stage would probably be negative? I don't want to go on 60mg steroids unless they can be sure it is GCA. Has anyone else had GCA go on this long?
Sorry there are lots of questions, many thanks