Hello to all my lovely friends! My journey this past month since getting out of hospital has been interesting. Amazing how I had already forgotten experiences from my first hospitalization and diagnoses in late June already. Came home bloated from the IV fluids, back up to 60mg a day of prednisone and with an anti-anxiety drug on top of the anti-depressent because I had a total meltdown while in hospital. Took me about a week to gather enough of my shredded wits about me to realize that between the pain meds and anti-anxiety med I was an unhappy zombie who was eating bad things because there was nothing else she could do. So, got tough and did a fast taper (so fortunate to have a brother who's a PhD/MD) off the anti-anxiety and pain meds. Threw me for a bit of a loop my gut was not happy with what I'd been eating anyway so I was tied to the commode for 2 days and then the light at the end of the tunnel. Let myself rest for a couple of days then my son took me to see my parents before they left for the winter (I won't see them until April) and my head is now clear enough that I'm back to managing this illness which has changed me and my life. Biggest issue now is finding a GP who will actually listen to me and wants to oversee my healthcare. This new one I started with a month ago is horrible. Asked a question about my hormone replacement interacting with the pred and she said "I'm not prescribing either of those so I don't know'......asked about getting a refill of my anti-depressent "you haven't seen a therapist in a long time, you need to do that before I can authorize a refill" I asked for a month refill so I could find a therapist who takes my insurance (not easy to do) and she said "no". ????? Better for me to run out and have none???? WOW...... Seeing a new eye dr today, mine left without notice. Hoping to figure out what's up with this blurry vision. The methotrexate is hopefully doing what we want it to do. 5th injection today and I'm down to 45/40 on the pred for the second week, go for bloodwork tomorrow and see the rheumy Tuesday....praying all my levels are where they're supposed to be. Sorry for the long post, need to keep up with you all more regularly. Now that my head is clear I shall!!
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