I was diagnosed with PMR in Nov 2013. Started on 40mg of Pred. Got down to 1mg last November -- after one year -- but felt awful. Over the winter it went crept up to 15mg. Then down we went again -- to 9.5 at present. Last lot of bloods were OK so Dr said I should reduce, and that one can get symptoms of Pred withdrawal. So I went with that explanation. Going down from 13 to 9.5 at present. I have felt rough now for 2 months. I take Nurofen with a meal to combat some of the pain I am in. My legs are so painful -- calves and shins. I have sciatic pain down left leg. Pins and needles intermittently in my feet and a weird pressing down sensation on the top of my feet.
I have had 6 sessions of physio and she thinks that there is some underlying problem (like the PMR). She says my muscles feel spongy and she wonders if I have a circulation problem.
I went shopping yesterday afternoon and went to lie down when I got home because I felt so rough and the pain in my legs was so severe. Shoulders a bit achey and tops of the arms -- but the real problem is my legs, and physio thought they were swollen today.
Anyone got any light to shine on all of this?
I have the chance to go to Lisbon for a week with my husband at the end of October, but it is hilly and I am not sure that this is a wise thing for me to do. I haven't booked the flights yet.
Thanks everyone. I feel low and a bit desperate.